Aa
Aa
A
A
A
Close
Avatar universal

Chiari and syringomyelia

Hi. I just joined this forum a few days ago. I have been decompressed in the last year but have CM1 and syringomyelia . Is anyone else in my same situation? I would love to know how others are doing post surgery and whether anyone had improvements past the 1 year post surgery timeframe!

Thanks,
Jen
2 Responses
Sort by: Helpful Oldest Newest
Avatar universal
Hey! I was decompressed 2 and a half years ago for those things exactly. As the doctors said my surgery 'didn't go as well as they hoped' and still have a remaining syrinx in my back. However the difference between one year post op and the second year were quite different. A lot more of my syrinx had moved and my symptoms became so infrequent that I almost forgot I was ever diagnosed! However, 2 and a half years later i'm now experiencing symptoms again that I need to go and get more scans for. It really varies from person to person but in everyone that i've met every thing has gotten at least slightly better between that time frame.
Wish me luck for my next scans and good luck for your future :)
Lex.
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  Hi...I do not have syringomyelia, but have tethered cord...and was decompressed in May of '09 and I just wanted to say that I did see benefits and changes form 1 yr to the 2nd yr post op.

  Hang in there : )

  "selma"
Helpful - 0
Have an Answer?

You are reading content posted in the Chiari Malformation Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
987762 tn?1671273328
Australia
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease