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Chiari Malformation Community
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Chiari malformation type 1

Hi all.  I have been diagnosed with chiari malformations type 1, 2 years ago and it was blown off like it was nothing.  I just changed Dr's in June and she found it again and wants me to see a ns Dr ASAP because  I have had a really bad headache for the last 2 years. I have also lost a lot of muscles in my back.  I have a few really bad parts between my shoulder blades up through my neck wear at times it is hard to move my neck.  It also feels like my head is going to explode most of the time. Can anyone tell me anything about this chiari malformation and any good Dr's around wyoming or the surrounding areas I really don't know how much more I can take.  It has taken over my life.  The reason I say that is I use to be able to work ,stand, sit, and life things with no problems but now I have problems doing everything. I use to be go go go and now I have to force myself to even get out of bed most of the time it really *****.    Please someone help me thanks Jessica
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620923 tn?1452919248
COMMUNITY LEADER

  Hi and welcome to the Chiari forum.

We do have a list of Drs that were compiled by the members here of Drs they have been to, treated by and liked.....the list is not a referral nor an endorsement for those listed....the list is meant to be a tool/starting place for you to research Drs.....keep in mind we may have to travel to get to a Dr that is well informed and experienced not only with Chiari BUT ALL related conditions too.

I do not have any Drs listed for Wyoming....but I do for CO....Dr O is well known and I have heard he is going to retire....not sure when but he will be training Drs on Chiari....so could be a place to check out....there is one other listed for CO and I do not know that one at all.

COLORADO

Dr.Hans Coester
University of Colorado
Formerly
Poudre Valley Health System
970-495-7421
Fort Collins, CO


Dr. John Oro
Chiari Care Center
Aurora, Colorado
(303)-481-0035
Avatar universal
Dr. Oro is retiring and not taking new patients.  I have been trying to find a NS as well.  
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