Hi all, I appreciate reading the Q&A here and thought I would jump in...
I had seizures in my sleep 2 years ago and had a CT scan that was consistent with chiari. The chiari was not a concern to anyone and I was diagnosed with sleep apnea and got a mandibular advancement splint. Since that time, my apnea seemed to change more from obstructive to central. I feel that I exhale and don't inhale again, or else my breathing is just too shallow. I also have more difficulty when sleeping on my left side: pounding heart and shortness of breath. I also have "shocks", pulsations, and jerking muscles in my sleep.
In July, I finally got MRIs of neck and head which showed a 9mm type 1 malformation with no associated syrinx. The neurologist said that there was no blockage and that 5mm is still considered normal so I'm really only 4mm over. He said if I wanted to see a neurosurgeon I could, but he thought the NS would be very abrupt that I didn't need surgery and was not concerned. I declined the NS consult at the time but now think getting laughed out of there might at least be reassuring.
Since that MRI 2 months ago I've had increased headaches, brain fog, weakness, pressure, blurry vision, and dizziness. I had experienced each of these before but not all at one time. I'm wondering if anyone else has experienced a rapid progression of symptoms.
I've ordered the book Conquer Chiari to educate myself.
I'm also curious about what alternative therapies exist. I've been drinking more water and am interested in trying natural anti-inflammatories and am wondering if anyone has had any success with that. I'd like to leave surgery as a last resort.