Connections b/t abnormal QSART and CM?

[dkdean]

Would those be connected?  Or should I add the possibility of small fiber neuropathy to my list?

[selmaS]

  hmmmm interesting tidbit, this med is banned by the Olympics as it helps control stage fright.....lol....and tremors....oh my....I guess that can enhance a performance if u no longer have stage fright and no tremors...

  Please let me know how it works for u.....

[dkdean]

The new med is propranolol--a beta blocker.  It's normally used for high blood pressure but is FDA approved for migraine.

http://en.wikipedia.org/wiki/Propranolol

I started it yesterday--1 tab for 3 days, then 2 tabs for 3 days, then 3 tabs for 3 days (monitoring vision the whole while)--then 2 tabs 3x/day--if needed. Who knows?!?!?!  Certainly hoping it will help as the vision continues to deteriorate and it's been so long since I had 'normal' vision.

[selmaS]

  Oh my...well at least u r moving forward not backward and if they can get positive results with meds, that is better than more surgery......

May I ask what meds it is ?

Please keep us posted on how the meds work for u, as I pray they do help.

   "selma"

[dkdean]

I've gotten the official dx of small-fiber neuropathy.  The QSART results were abnormal and the NL says that it wouldn't be CM-related b/c it measures the actual small nerves, not the brain's message to them.  

But, it doesn't explain the visual symptoms (which I feel are CM)--the NL wants to try treating it as a 15month aura w/out the typical migraine headache...so, the next month or so we are going to give meds a chance.  Depending on how the meds effect the vision, it'll help me to know if it's migraine or CM.  Then, decompression if needed.

Always another question around the turn, isn't there???????

[selmaS]

  Please keep me posted on what u find out, I find this all very interesting too : )


    "selma"

[dkdean]

Selma--Very interesting!  My NL had the QSART done since I have numbness in my hands and forearm and unusual feeling in 'pockets' around my body.  The QSART is showing that points farthest from my brain/heart (foot, wrist) are not receiving the signal as they should.  I am curious to see if he feels that is due to herniation or something else.  We shall see!

[selmaS]

  Well this is interesting as this is something I have yet to figure out...most of my life I felt I never really perspired.....which was not an issue as least not to me at the time...in the last few yrs 3 or so, I had been dx'd with Hashimoto's and noticed I was ice cold but sweating profusely in my underarms....

  If this is small fiber neuropathy...I am not sure as I am seeing a change in this too as my symptoms r still changing.....so ...I am open to learn more ....

   "selma"