Aa
Desperate for help!
For 6years i have been having these symptoms, every 3weeks it starts with a rash round my neck and sometimes my face, this will last for about 3days, then i start to feel itchy all over! and a feeling of flu like symptoms! i feel dizzy,and the tips of my fingers go numb! then my chest starts to feel tight after a week of this i get a chronic pain in my breathing tube and its hard to breath past this pain. this will last for a week to 2weeks.
As well as this i have-chronic daily Migraine attacks! and all my bones feel like ice one minute and burning the next, my doctor has said ..Why don't you just get used to it???? and just today she told me -i am wasting everyone's time!!!!! and there is nothing more she can do for me.
If anyone out there recognises these symptoms please please let me no? i feel so alone with this and i have no quality of life just now, and don't no were to turn.
As well as this i have-chronic daily Migraine attacks! and all my bones feel like ice one minute and burning the next, my doctor has said ..Why don't you just get used to it???? and just today she told me -i am wasting everyone's time!!!!! and there is nothing more she can do for me.
If anyone out there recognises these symptoms please please let me no? i feel so alone with this and i have no quality of life just now, and don't no were to turn.
Thanks so much for ur kind msg!!! i am feeling rather down with the lack of support from my GP but i wont give up! stay well x
COMMUNITY LEADER
Well u r doing the right thing in pushing for tests...I had Lupus, lymes, MS and others.....the trouble breathing is not a good thing at all....
Many of us, myself included were dx or told our issues were stress, anxiety etc....but don't let that get u down, u know ur body...keep pushing for more tests and answers.
"selma"
Hi, Thanks for the msg! i have had NO tests at all as my doctor puts all my symptoms down to "stress",i have asked for a Lupus test! so that's what i am waiting for.Each attack gets worse and the last one i had to go to hospital! as i couldn't breath.
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Four years ago...I had a spell of numerous (mostly neurological) symptoms which just bombarded me...out of nowhere! I am STILL searching for answers...as my Diagnosis of Fibromyalgia just doesn't seem to answer many of my symptoms. I've been tested for MS, Lupus, SjS, Lyme's, Wegener's, etc...ALL to no avail! One thing I have continually requested is a Spinal Tap...which has never happened. I've also requested that my C-Spine be repeated...due to an "artifactual spot" on my C-Spine...hasn't happened yet either! So...I know your frustration very well! Hang in there...althought it's tough! You are NOT the only one in "limboland!" There are numerous of us who are! I continue to here reports from others who, after many years, FINALLY get their diagnosis! We will too...SOMEDAY! {{HUGS}} ;)
~tj