Hi as jiggle mentioned it is like a death...of ur old life, but it is the birth of ur new one with Chiari...I know who wants to celebrate that, but once u r done grieving ur old life u will find new things to inspire u to get up...
I found I can paint and I love it, I also do all sorts of crafts, I am making a baby quilt right now....so, on Friday's Fribble thread we share what we r working on and then post pics...
Once u r ready u will find ur way...do not try to go back to what u had or were, u need to reinvent who u are.
Hi Dare2,
I'm not sure if this will help you at all, but this is how I deal with my Chiari and related health issues....
I thought of it as a loss, much like the death of a loved one. I had to cycle through the grief of loosing all the things I used to do and how I used to feel. This took time, and I couldnt rush it...much like an actual death, the waves of emotion would come randomly.
They say there are 5 stages to grief: 1-Denial and Isolation, 2-Anger, 3-Bargaining, 4- Depression, 5- Acceptance.
I have gone through all 5 of these, and can tell you that sometimes I still struggle with what I can no longer do. But for the type of personality I am, (as well as my family history) I have to put my own spin on it...meaning- I force myself,(or have a family member help me) find a silver linning at the low points as to not hold on to the anger. I come from a "victim" mentality family back ground so for me, I just cant stay there as I have seen what that does to a person. Not that I view anyone elses journey or struggle that way, just how I personally survive! I still get frustrated...daily...but when I cant do, I find what I can do...even if its miminal! And when I'm in bad pain, I say ok- today chiari wins- I'll lay low and hope that tommorrow I can be better...this is the hard one as the day sometimes stretches into many days....but I have hope for each next day!
Please dont be too hard on yourself, none of us would go through this garbage if we had the option. We are all on here to support each other and offer an outstreatched hand, but in the end you have to live with this on your own and will have to find your own way through it. Each one of us is different even tho we share common illnesses.
Again, this is just what has worked for me thus far....but it is a process, so we'll see how long this works before I have to re configure!
Wishing you a better day!
Jiggle