Hey everyone, I hope all is going well for everybody!
I was diagnosed (yay! finally a diagnosis) with dysautonomia, not sure which type yet, on Friday! I started Midodrine and although this is only mildly helping it is a start :)
Anyways, I have two questions about dysautonomia and Chiari for those of you who have both of these conditions or know about them.
The first is about the tachycardia. I am having issues with tachycardia that we were not sure if they were from adrenaline that comes with the black outs or a separate issue. It seems to be a separate issue based on how the Midodrine is working. I was informed over on the dysautonomia forum that Chiari may also cause tachycardia in some patients. How did you differentiate between tachycardia caused by Chiari and dysautonomia? Does it even matter which causes it, since either way it would be treated the same?
Secondly, my doctor mentioned that he may want to start me on Florinef. I originally though this sounded like a good idea, but I have read that it can increase intracranial pressure which can be problimatic in Chiari patients who already have increased pressure. Has anyone tried Florinef? What are/were your experiences? I will contact my NS and see what his opinion of this is, but i was wondering what you guys have heard/ experienced.
Also, any other information on dealing with these two conditions together would be greatly appreciated :)
Thank you!
Sara