Dysphasia?

[sweetjen680]

Hey, can anyone that has dealt with dysphasia due to CM, explain to me what it felt like?  
Did anyone have it appear post decompression?  
I have had a weird lump thing in my throat since March.  I have been to an ENT and there is no infection or anything growing ( thank God), but nothing he has given me has helped.  I am starting to wonder if that's what is causing it.  I can still eat and drink without any problem, but it's so irritating...just feeling like there is something there.  Anyone?  Thoughts?

[sweetjen680]

I am pretty sure I don't have EDS.  After looking at the symptoms, I don't really have anything like that ( except maybe the arthritis...was diagnosed at 30, but I am (was) a marathon runner.  10 full marathons and 16 half marathons, on pavement, in 5 years, will do that to you...)

[sweetjen680]

Drew, spelling error :). My iPad auto corrected and I didn't recognize the difference.

Selma,
This sounds EXACTLY like what I have.  I don't remember prior to my DX because my other symptoms were so terrible, especially due to my hydrocephalus.  I think I probably must have the swallowing issue because I end up with water on my shirt all the time.  I remember just recently doing it andmy friend saw it and I was like, " did you see that?". I thought it was funny.  Oh the never ending world of chiari

What is UES and LES and is there anything I can do for this?  Does it mean that something might be "coming back", post surgery?  I am due for an MRI next month. Should I be concerned or mention it to my dr?  I have a follow up with my ENT in a few weeks.

[selmaS]

  I forgot to add I did have swallowing issues b4 surgery, I would take a drink and swallow only to find when I went to take another sip I still had some water in my mouth it did not all go down, and I was not aware of the water still in my mouth...it was very odd,....I had the swallow study and they could not detect an issue...I do however have a hiatial hernia and EDS so I thought my issues were more along those lines..,but I  do not have swallowing issues post op like I had b4...I would gag on who knows what saliva?? when laughing....to the point of vomiting.... this has resolved.

[selmaS]

  Hi, I have to wonder if it could be Silent GERD/Reflux as it can cause that sensation. Many with chiari can and do have GERD/Reflux issues.

DO u know if EDS was ruled out as hiatal hernias r also a cause for this issue.

Symptoms of Laryngopharyngeal (also known as Silent Reflux) Reflux are:

Continual throat clearing
Chronic throat irritation
Chronic cough
Hoarseness
Excessive phlegm the throat
Dysphagia (difficulty swallowing)
Constant sensation of something in the throat
Swallowed food comes back up
Post nasal drainage
Weak voice
Cracking voice
Blockage of the breathing passage
Spasm of the larynx (voice box)
Wheezing
Heartburn( not all will have this)
This condition is a result of both UES and LES not working correctly.
And it is possible not to have typical gerd/acid reflux  symptoms.

[drewlevas]

Dysphasia is the impairment of speech and verbal comprehension, especially when associated with brain injury. My youngest DD as this.

I think what you are describing is Dysphagia which is the medical term for the symptom of difficulty in swallowing. I found the wiki diffinition you can check it out: http://en.wikipedia.org/wiki/Dysphagia

I experience perriod of dysphagia, but for myself it comes and go. But I didn't had the decompression surgery so I can't tell you for after the surgery. I found that myself it's worst when I'm tired or I have surge of acid reflux.