I should also mention that I have kyphosis as well, so that's probably where the back pain comes from...but even so :-(.
Hi,,,,do you have copies of the MRI itself?.....And more info from the report....you gave small snipets which have some info but many times there is even more info in the rest of the report.....
Many of us with tethered cord have issues with scoliosis no matter that it is mild...it affects the spine and can also affect the pain from Chiari.
Have a true Chiari specialist review the MRI's and let you know what is going on....
Do you know if any report of your Brain MRI stated you had an elongated brain stem?
Hi, completely forgot I posted this! Yes, I have copies of the MRI, though they are digital and are only accessible through my patient portal of my radiologist. Those impressions I listed were the only things that were mentioned as remarkable by the neuro radiologist, even though yes, there is more information in the report, for instance about each cervical disc, etc, but everything is unremarkable. It was never reported that I had an elongated brain stem. I don't think it's a coincidence that three different neuro radiologists, an orthopedic surgeon and a neurosurgeon have never noticed a syrinx, probably because one isn't there. Regardless, I never trust it.
I still haven't been able to find a neurosurgeon due to my terrible insurance, and am contemplating going to a neurologist.