Thank you both for your response. It is so nice to know I am not alone.
I want to clarify these Headaches are completely different than before. Plus I have been relieved of other debilitating symptoms such as a foggy mind, extreme fatigue, random tingling, ect. Although my NS was not a specialist he did a wonderful job and he is a wonderful doctor. I would recommend him to anyone. I have had a negative MRI post op. Anyone that knows about nursing knows there is heavy lifting. Plus being a mom of three little ones I can only stop so much. My life must go on. I know I need to do my exercises more. Thanks for reminding me. I went back to my neurologist today. He added a drug, did a different injection, and has but in a referal to chapel hill. He has asked me to continue to have hope so I will. Thanks again for helping know I am not alone.
You are not alone it has been almost two years for me and still have headache everyday. After my decompression I had a fusion of c5c6 and then I was dx with occipital neuralgia.. The only thing that has helped besides pain management is chiro and acupuncture. I am a pediatric OT and also work part time but somedays it is hard to pretend I don't hurt so much. Many of us that get decompressed get occipital neuralgia from the surgery. I hope that yours go away but as you figure out what is going on know your not alone. I too have 2 children hard to get it all done. Luckily I married a saint who helps me beyond words. I wish you the best and hang in there.
Hi and welcome to the Chiari forum,
I have to ask if u were checked for related conditions b4 u had ur PFD surgery? The underlying condition may be causing u to have HA's.....r they the same type u had b4 surgery ir r they different?
And is ur NS a true Chiari specialist?....
Have u had a MRI post op? What do u do on a daily basis? With ur job do u have to do heavy lifting and how long r u back to work...u may be doping too much, our bodies have a way of letting us know.
There r many questions, I am sorry but to better understand what u r going thru and options it is helpful to know a little more.
I had surgery 3.5 yrs ago and am doing pretty good, outside of related issues....I am on TOPAMAX to help with HA's and it does help....
Did / do u do neck exercises to help keep ur muscles from getting tight and prevent the formation of scar tissue.
Know u r not alone...we r here : )
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