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Hello new here can any one please respond about chiara diagnosis.

Hello I recently got diagnosed with chiara I don’t understand a lot about it I’m 18 I had symptoms when I was young such as when I used to go on flight my ears wouldn’t recover from fullness and tinnitus for weeks but my parents never had it and I had cramps a lot but I didn’t think much till I got punched in my jaw and got diagnosed with tmj  and my symptoms instantly worsend  nerve pain everywhere shooting pains even in my teeth I get cough headaches from cough pooing and sometimes laughing I get nerve pain when hot like prickles and vibration sensation and I have Erictle dysfunction from my autonomic nerves I even hear this weird water splashing noise in the back of my head I’m hear to ask does face injuries activate chiara symptoms I read some one who was in a car crash and it activated his symptoms as soon as he woke up thank you and sorry for making this long.
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620923 tn?1452915648
COMMUNITY LEADER
Hi and welcome to the Chiari forum.

Each of us will experience this journey with Chiari differently, and this can be attributed to other  related conditions we may have as well.

AS for can an injury trigger the symptoms....YES! But it sounds like you had symptoms prior to the injury, it sounds like you went into a flare after your injury.
Chiari symptoms can cycle...they seem like they are never ending then one day you are free of them and just as you get used to that , they come back....

The TMJ could be due to a related condition , Ehlers-Danlos Syndrome....many with Chiari also have it. Do some research on that.

I hope I answered your questions, if not, ask again....just know you are not alone.
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Avatar universal
Thank you so much for responding I’m finding it very hard and painful these symptoms especially shoulder pain I have recently been diagnosed with carpal tunnel which defo have a link because I don’t use the computer often and have never had a problem with my wrist till being diagnosed with chiara I think there’s a link called syringela sorry for spelling thank  you atleast i might not be going crazy after all with the symptoms
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620923 tn?1452915648
COMMUNITY LEADER
No worries...yes I think you meant SYRINGOMYELIA...that is when a syrinx, or a pocket of fluid forms and then obstructs CSF flow...and can cause compression of the spinal cord and depending on where the syrinx forms will determine what symptoms you have.

As far as carpal tunnel, I was DX with Tarsal tunnel ( ankles instead of wrist) and had surgery, only to find out they did it wrong and I required a second surgery. Do not rush into ANY surgery, because you need to rule out ALL related conditions first as that should indicate how the surgeon should proceed.

To help with spelling-- CHIARI is pronounced KEY  AR EE
SYRINGOMYELIA is pronounced  Sa ring go my ee lia
Knowing how to say them can help with the spelling aspects..

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Avatar universal
Hello Thank you it’s really stressing I hope your okay sorry just one more question can you have more then one syringomyelia and when u sit do your feet tingle very quickly In the toilet I have this and I don’t know if it’s tarsal tunnel max 20 second it’ll start tingling and when kicking my foot in the air it’ll instantly tingle my foot thank you
Helpful - 0
1 Comments
No worries, ask as many questions as you have.....Yes, you can have more than one syrinx, syringomyelia is the condition of having a syrinx....so it's more than one syrinx, not syringomyelia.
I had tingling in my feet and I didn't have a syrinx....we can have all sorts of neurological issues due to Chiari, Syringomyelia, Ehlers-Danlos. Tethered Cord...and a few other conditions.
Avatar universal
Hello thank you so much you are really nice I’ve been reading your other answers your very well educated aswell one day I hope I will be as educated in this weird illness
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1 Comments
You are very welcome.
If there is any way I can help you, please let me know.
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