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1311927 tn?1311705945

Help

I need answer damn it .... every thing i find online about treatment for my chiari is all surgery .. but i have already had surgery and my neck and head hurt all the time now and im so tired and worn out . I just want to find some one who can help with my prob. im tired of being told i dont know and have a nice day nothing a can do for you . Its Painful and it *****

Does anyone know of a doc that can help me manage my symptoms In so cal. I have been to La Jolla , Loma Linda and UCLA and so far no one wants to help or can figure out how to help i can do this much longer
5 Responses
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620923 tn?1452915648
COMMUNITY LEADER

  I am confused, didn't u have post op visits with ur NS?

Most NS will see u at least at 6 weeks, 6 months and then at 1 yr post op.....did this not happen?

   "selma"
Helpful - 0
1311927 tn?1311705945
thanks and it wouldnt hurt to look for pain management  . Thats what my primary doc wants to do at this point if my mri say i dont need surgery again . I just want help to control my symptomes ya know .
Helpful - 0
1311927 tn?1311705945
Its been 15 months since my surgery ,,,,,,, No one has run any test that have to do with my Chiari . Lot of presure but my neck will be hurting before my head starts hurting . I cant eat with out getting nausated or diharriah . sorry no thats gross . weak feeling numb all over after i eat . My primary is running a bunch of blood work and had me have another MRI . So she is going to try and take care of me if she feels i need surgery again she will have me go back to the NS . The NS that did my surgery has been a flake a couple of months back had some really bad symtomes tried to get in to see him asap and he kept resecduling so i got pissed and gave up . I justdo know what else to do i have seen so many dif doctors and non know what to do or say
Helpful - 0
1306714 tn?1327257080
I know how you feel.  It is so flustrating to get up every day and not feel good.  My Dr suggested to me yesterday at my visit to go to a pain clinic for pain relief and I don't know if this is a good idea or not.  It's scary.  I hope you find your answer's, but maybe pain shot's might help.  I am still trying to decide
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  Hi...it's been a while, so sorry to hear u r not doing ne better.

How long is it now since ur surgery?

  Have u been tested for ICP?....

Is ur head pain more of pressure?...is it positional?

  What other symptoms/issues have u had post op?



   "selma"
Helpful - 0
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