I've not posted until now, but always keep an eye on anything that may explain anything to me!
I was hoping someone may be able to shed some light on my symptoms! Apologies if this goes on a little bit...
First some background - I suffered from severe headaches for as long as I can remember, along with left side weakness and several other symptoms. After many years of doctor’s apps and misdiagnosis, Early 2017 I was diagnosed with symptomatic CM Type1 with a 23mm herniation, no syrinx but with CSF restriction. I underwent decompression surgery in May 2018 and after a few rough months my symptoms started to improve!
Late 2018/Early 2019 I was experiencing severe aching pains in both legs, my neurologist prescribed me Pregabalin which seemed to ease the pain but was by no means a ‘fix’. I was formally discharged from neurology in March 2019 (to my displeasure). The past 8-10 weeks I have been experiencing excruciating pain in my left hip which radiates down the back of my thigh and up slightly into my lower back, several doctors appointments later my gp decided I have Piriformis syndrome and have loaded me with zapain and baclofen, neither of which seem to make any difference. Next option is physio, due to start in the next couple of weeks. Following this the past 3-4 weeks I have also been experiencing upper left side weakness again, my left arm feels noticeably weaker than it ever has, clenching a fist is more of a challenge than an exercise! I have been referred back to neurology for this, and am awaiting appointment details.
I was wondering is anyone else has had similar hip symptoms or whether this could be related to CM at all? I am fairly confident the weakness is linked as I experienced this before decompression, however my hip/lower back pain seems to be pushed off as a different issue completely.
Thanks for taking the time to read my story if you got to the end!☺️