That may be right now, but I know we have had members qualify for a trial...so keep checking for a new one to begin.
Keep in mind the link I gave is for an older trial....do look for current ones....NIH is in MD...so she would have to travel....I am not aware of neone in AZ that may be of help....the closest is Dr Oro in CO....but I do not know what financial help he offers....
The one at the NIH is for anyone who has it. I had my surgery there.
That sounds wonderful, but we are not even sure what hospital would be best. We live in Flagstaff, AZ. So, Phoenix is close. Perhaps there would be a good start.
Thank you so much. Unfortunately, all the trials are for someone with the condition who also has a family member with the same condition. She has no family with the condition.
Apology accepted. Sorry about the meds.
OMG...so sorry nsalem....not sure how or y I did that...not Molly...lol...thank u Chiari and the meds I am on the last few days.....ugh.....
Hi and welcome to the Chiari forum.
Thank u on behalf of ALL Chiarians that do not have the support that u r showing to ur partner...we all need someone to be an advocate or a shoulder to lean on, and not all of us have that, so thanks.
Next, as Molly mentioned above, many clinics will work with u, and there are clinical trials that are being done that is of no cost if she is accepted into the trials....we do have a link to the trials here....
http://www.medhelp.org/posts/Chiari-Malformation/clinical-trials-are-recruiting-now-/show/706710
I'm not a hundred percent sure, but sometimes hospitals work with you. Ask the hospital you are going to have her have the surgery in about that.