I have an 8mm herniation.I have a ton of symptoms that have affected my daily life. I can't even work any more. I forgot to mention that.
Hi, you said you are having nausea? Could you tell me a little bit more about it? That was what I consider my first symptom and my GP tells me that to isn't related but for a year now, as soon as I open my eyes in the am I am extremely nauseous and start to Vomit for about 20-40 minutes. I'm so glad, you finally found a dr to listen. If I hear the term "subconscious eating disorder" one more time I might snap.
Hi tlofty and welcome to the Chiari forum.
May I ask has your Dr ruled out ALL related conditions?
Recovery is dependent on what other conditions you also have....and on your Dr and you....how your body typically heals.
What other issues do you have?...Did they do a CINE MRI to check for a CSF obstruction?
I had surgery in May '09 and can say I am finally better then I was b4 surgery....surgery was the best thing I could have done....but I do have EDS and I heal slowly so, it took time for me to bounce back....and I do have a few related conditions.
Hi and welcome. I just had my Chiari surgery I have been out of the hospital now for about a week and a half. The nasuea I had went away and I don't have the numbness And tingling anymore. I am still having pretty bad headaches but not the same as before surgery. Everyone is different and it depends on what your symptoms were before surgery and which ones are directly caused by Chiari .
For many that have had the surgery done they are very happy they did. I hope to still continue to see more positive changes and move on with my life.
I wish you the best with your surgery.
Everyone experience is so different, but one thing that helped me from getting scared is. "You don't have a choice in getting this surgery done". Is it easy "No" Is it worth it "Yes". I had to unfortually had to have 4 in all, but reason being something was rejecting the stitches in my head. Nothing no one else has had. For recovery it is also different time limit. 1 thing I suggest is just listen to your body. You have been dealing with this for a while so you will know. When you feel you need to rest, Rest. no lifting or bending or carrying anything over 10 pounds. Personal hints for the hospital stay that helped me. I do know they have a site here that has suggestions. I was 49 when I had my surgery and after all 4 surgeries I started my menstural so I would bring some personal products just in case, undies, and your favorite pillow, I also brought extra so I could change it everyday. You will do fine, and as I said it's nothing to worry about it something to look forward to because it will help you feel better. I know my balance is better, and having surgery is life changing, because there are things us chairians can no longer due after surgery and it has taken me 5 yrs to adjust, but I'm strong willed any way so it helps to have that. I wish you the best and I hope this helps a little bit. Wishing you the best.
Not sure how long until you might be able to go back to work....what type of work do you do? I lost my job when I was out post op.....never went back....I am now looking for a way to earn from home.( I no longer drive)
The activities you mentioned may be difficult to get back to all at once, but over time you may get back to them....I also love camping and hiking....but the hiking was too much for me post op.....and I have not had an opportunity to get camping, but know the type of camping I do, I could have been back at it now for a few yrs....Swimming I was back in a pool a few months post op...but it was uncomfortable to swim holding my head up, so I turned over onto my back which worked great....I also did a lot of walking around inside the pool to help gain balance and just to have exercise...I loved it.
I wanted to let you know we do have a Prayer thread we post for those going in for surgery...I will bump up the "list your surgery date thread" so you can post your date if you would like a prayer thread posted for your surgery.
I bumped up the thread so just add your surgery date and a prayer thread will be posted for you...wishing you all the best.
Please ease your mind and consider how truly blessed you are to be getting this surgery. I would give anything to be in your place!! I will die bcuz nobody will accept my Louisiana medicaid. I've been fighting everyday for help for nearly two years and I'm exhausted just laying here waiting to die. I have chiari and a pineal brain cyst. I have two posts on here.... I wish you all the best and a bright future:)) Hugs~
@ Claire have you attempted to see if you can get into a clinical study?
If you are interested in checking it out....please let me know.