In need of a neurologist that specializes in Chiari malformation in TN/AL area?

[Beck8994]

I was diagnosed 13 yrs ago with a 5 mm Chiari malformation, as an incidental finding.  About 1 1/2 yrs ago I started having some symptoms.  I am progressively getting worse.  I have been to a couple of neurologist & they are ignoring the fact that I have a Chiari & trying to diagnose me with other problems.  Can anyone help?  

[selmaS]

  Hi Sorry yes NL = neurologist....NS is of course Neurosurgeon

Once you have a DX ( diagnosis) it is best to find a true Chiari specialist which are NS's.....

A NL will DX and a NS treats....with surgery of course.

BUT you need a well informed and experienced Dr that treats Chiari and ALL related conditions....a NS any NS can treat with surgery for Chiari but not all know about the related conditions and how they can affect recovery.

Educate yourself on ALL related conditions and it will be easier to know when you have the right Dr for you.

[Beck8994]

selmaS Thank you for your help.  I know what NS stands for but what does NL stand for?  I'm unfamiliar with those abbreviations.  Is that just a regular neurologist?  Do most people with Chiari just go right to see a Neurosurgeon?  I'm just so frustrated!

[selmaS]

  Hi and welcome to the Chiari forum.

Chiari specialists tend to be a NS not a NL.....once you are DX'd  you will want a NS that is a true Chiari specialist. and you may not find one near you.....so travel is the next best thing and well worth it in the long run,

I can post a list of Drs compiled by the members of Drs they have been to and liked in your state but the list is not a referral nor an endorsement for those on the list it is just a starting point for your research on Drs....visit a few,  compare and see which is the best one for you.

Again this list is NS and not NL.....but you could ask the NS which NL they work with
TENNESSEE

Dr. Stephanie Einhaus
Semmes Murphy Clinic
Mephis, TN

Dr. Carl Hampf
Baptist Hospital
Nashville, Tennessee
800-668-9410
[phone]

Dr Reid Thompson
Vanderbilt Hospital
Nashville, Tennessee

Dr. Cheng
Vanderbilt Hospital
Nashville, Tennessee

Dr. Samuel Hunter
Nashville, Tennessee

University of Tennessee
Dr. William Snyder Jr, MD
Neurosurgical Associates
1932 Alcoa Hwy Suite 255
Knoxville, TN 37920
[phone] (Office)