BUMPING up for dates in March, April and May surgeries
Selma, I just saw this, I wanted to thank you for posting this. I think it is very helpful, Dee
I'm sorry, if I had seen this when I was having surgery I would have used it.
Perhaps we could pray for Barb? She is having some difficult.
Thanks again, D
I found out when I was 15 that I had a CM.Dr told me I was fine nothing to worry about always had symptoms such as headaches,dizzy spells,balance problems and breathing problems which it was so bad it was thought of being seziers and pain in my neck and back. Years later had car accident symptom was worse which was when I found out about CM. Didn't have insurance to go to another Dr I took the Dr for his word.had 3 beautiful daughters with IV Meds and they were all born natural finally got insurance been to alot of Dr's I tell them i have CM and show them my report and they don't believe me ,and treat me like I'm crazy just because the Dr didn't ever hear ofCM which I have been researching after losing complete sight after dropping my kids off at school. That was scary I went to a neru Dr who did a MIR which show CM but the report say I had the surgery which I have not.I got a Dr appointment with a ns but before my app.found out in pregnant again the ns wants to do the surgery right after I have the baby. I'm 2 days away from 15 weeks pregnant. They want me to have another MIR immediately because ns says I have the worse out of 3 he had ever seen and worried that it has gotten worse in the 2 years since the MIR with the wrong report lucky I had the dics tie show him.ob is telling me I need a c-section which in scared of because I had a dnc before and the general Meds didn't work right I woke up in the middle of surgery I also heal very slowly so worried about recovering. I also get burning feeling in hands a and feet.numbness throughout me body but its a painful numbness.lose control of me body.contration is bad along with memory chronic pain. And advice on my problems would be gratefully appreciated thank you
MindyMoney, I am so sorry to hear of your problems, I guess the first thing is to get through your labor and delivery. Why are they saying you have to have a C section? Is it because your condition could get worse?
Thinking of you Mindy, praying for a good outcome for you
Dear Selma, thank you for bringing attention to this. Is it classified as a disease? I had never heard of it before I happened to see one of your posts.
I tried to look it up just to familiarize myself and see many different types. I'm guessing there are more than this. It does say everyone is different and it's difficult to diagnosis.
What is the best type of doctor to see?
The NS sending me for a MIR next week because he said that my last MIR is the worse out if 3 that he ever see so he wants a new one worried that my cm has gotten worse in the last 2 years
Thank you selma and Dee for your help my NS when I researched him said that he is a specialist with cm
i will be having surgery June 14, 2017
bumping up for June & July surgery dates
Surgery is June 15th.. So nervous
I was recently diagnosed in April with CM with at least a 5mm herniation, luckily (for me) my doctor had to have brain surgery for something different, so she referred me to her NS. My appointment with him is next month on the 11th. I am 26 and after looking over an mri from 8 years ago (and pre-2 children) I noticed lower lying cerebellar tonsils were noted, so it has herniated more since then. I've been having worsening symptoms for about a year, tho the headaches have been around for years and years. I was also a competitive gymnast growing up so I have many other physicals problems like arthritis in all my joints and such, and was in a car wreck (t-boned my side of car door area, reason for first mri). These threads from this site has been my go-to on almost everything, it has helped knowing others are feeling the same way. Its so frustrating since others don't understand, and you go from thinking you're normal to being told you'll need brain surgery... but also realize your 'normal' isn't normal. My NS is in the top 1% of NS in America so I am fully confident in him and feel extremely blessed that I got into him and so quickly. My symptoms are getting worse, but brain surgery seems hard so grasp. I had originally made up my mind that I wouldn't do it until I can no longer deal at all with the symptoms and pain, but it seems as tho I don't think I'll be able to get around it. I hate that it takes an illness for these type of post, but I'm so glad all of you are so helpful in terms of symptoms and support.
Hello, My surgery is set for July 26, 2017... I would love every prayer you all can send up. As with most everyone that have faced their decompression surgery, my nerves are getting the best of me. Thanks, and God Bless!
My surgery is scheduled for August 21st. I'm nervous especially since it's my first surgery ever and I'm asthmatic so I'm also concerned about that.
To Mol30- Welcome to the Chiari forum.
We will gladly post a prayer thread for you.....have you talked to your Dr as to what all will take place during surgery? and After? It may help with things like your asthma....typically you are in ICU and on oxygen.....and being an asthmatic I am sure your Dr is planning on doing that...I had several surgeries before my Chiari PFD....and I was still nervous so that is normal.....but do get answers to some of the things that concern you as it will help you relax a little more about it all.
If there is anything else we can help with please let us know.
Chiari decompression August 15 at Emory in Atlanta! This forum makes me feel better and more nervous at the same time. There are so many different experiences.