MONDAY"S RANT ~~2013

[selmaS]

Rainy days and Mondays always get me down"
          .....so lets rant all day Monday- each Monday a different topic!!
                     Idea's for rants...ur NS, ur NL, ur PCP, ur meds, family and friends...the list is endless......

                                                            ........ post ur rant and get it out of ur system and enjoy the rest of the week!!

[selmaS]

Hi all I have not posted the MONDAY RANT thread for over a month and feel it  is time to bring the daily threads back.....

ne one have a rant for this week?

[selmaS]

  Hi all ne rants for this week?

Mine is still the changing temps that go with a seasonal change, my body aches all over...so no going to my DD's tomorrow to help unpack,,,we r almost done but I feel bad my body prevents me from doing more.

[FlowerGirl123]

Thank you. I go to my Neuro tomorrow.. I will run it by him and if he seems to write it off, I will run it by my primary doctor Friday when I go. I will see where I get with it all. Thanks :)

[selmaS]

  HA's = headaches

I also did not think I fit the criteria for EDS either...but I do, and was DX'd with it....I did not think I was flexible...even tho I had a great turn out for the different ballet positions....lol...I also think I did not try to get in odd positions when I was younger bcuz  had so much muscle pains that I just never thought I could...had I tried I would have known sooner...lol..

The only symptoms I was aware I had were slow to heal and bruise easy.....now I know I have quite a few others....so do not discount this on reading the symptoms, get a Dr to rule it out.

[FlowerGirl123]

Hi, I was never tested for EDS, but awhile back I had looked up symptoms.. I had heard about it, in a Chiarian support group I used to belong to. I didn't think to ever ask a doctor about it, because I don't have stretchy skin. I do have flexible joints and this "ugly" patch of skin on my leg.. that my doctor thought was an infection, but it never went away. I didn't think if I just had a few symptoms, it would be anything?

What exactly is HA's?

[selmaS]

  Hi....I know what u mean the needless red tape and hoops they make us jump thru is ridiculous....

May I ask, were u tested for Ehlers-Danlos since u have had issues with anesthesia? And seem to have other allergies as well...EDS can affect us in how well anesthesia works or not, and can also cause allergic like reactions to meds.

EDS can also cause u to continue to have HA's.....

[FlowerGirl123]

My first ever rant here, is.. I am just annoyed with doctors, nurses, insurance companies.. etc. I was supposed to have an MRI and an ultrasound of my carotid artery, well, just like every year.. since I had surgery in 2003, I get told my insurance will not allow for an open MRI. So, my Neurologist ordered a CT scan instead. Because he needs to prove that everything cannot be seen on a CT scan and an MRI is needed. Though I am sure, I will be told "You may have the MRI, but it cannot be open" the way they tell me every year. They want me to be put under anesthesia and do a closed MRI, because there is no open MRI's in the network for my insurance. Problem is.. I am allergic to everything.. I had a reaction to the anesthesia used for my decompression surgery.. do they really think, I am gonna let them put me under, needlessly.. when they have open MRI's?

So, I had my CT scan and ultrasound.. I go for results either tomorrow or Wednesday.. can't remember. I am so tired of Chiari.. the constant pain it causes me and the headaches I get from my insurance company. I just want to scream as loud as I can sometimes.. but that would just make my head hurt worse.

[selmaS]

  Hi all ne rants this week ?

I am just tired...working more then I am used to .....but we r making progress at my DD's new home...so it is all good....

[selmaS]

  I know Mel...I pray everyday for ur Ry so she gets the proper care now so she will not go what so many of us have, she is lucky that u already know so much and can help her get that care <3

[Rylanesmom]

My rant is it stinks o watch my children with my issues! It also stinks that I must sleep anytime I'm to at work to store energy for work.  My joints are so bad I wake in the middle of the night and can't move different parts. My fingers for example.

[selmaS]

  Hi all...this week my rant is ouch all over body pain...I have said many times b4 how I dislike the change of seasons and temps  as they affect  my body big time...everything hurts ...I know this is  my EDS acting up....but I really do not like this event with each passing of a season....ugh

[selmaS]

  Hi all ne rants for this week?

I am frustrated with my DH he does not seem to understand our DD's new home is theirs and not his responsibility....neone else deal with this b4....I do not want to say nething that will upset him to the point of not wanting to help them, but enuff for him to wait to be asked to help....lol...

[selmaS]

  No stress until my DH comes in to help...he just tosses everything and does not ask....so I told him to go to work and I would do it....lol...it is almost all done now, just hope we can water proof somehow to prevent this from happening again.

I understand how u feel with meds....yrs ago b4 my chiari DX the Drs did the same to me, put me on meds and then I needed meds bcuz the meds I was on were causing issues.....it turns into a vicious cycle....so if I do not NEED them I do not take them....Hang in there.

[hevnw8s]

Wow...lots of work for you selmaS! Hope it goes smoothe without a lot of stress.

My rant is about medications. Since my doctors said I should see a psychiatrist because of all my pain, I finally went. I was given a prescription which I started last night. Scared me to death. I walked into a wall, made a phone call and did things I don't remember. I've had ENOUGH medication and doctors!!!!!

I'm not crazy!!!!!  I'm sick!!!  Good grief!

[selmaS]

  Hi All...happy Labor day to those in the States !!

My rant this week is I am beat, we had a rain storm last week and my basement flooded and cleaning up the mess is old, but still a long way to go....one way to clean out the basement and throw things away.....NOT.

[selmaS]

  Very nice Lisa !!

[desertstorm2009]

I love rainy day Mondays..... Here's another one that I often think of

"Some days are diamonds
And some days are stone....
And sometimes the hard times
won't leave me alone....
Sometimes the cold wind
Puts a chill in my bones....
Some days are diamonds
and some days are gold :-)

[selmaS]

  Hi All....sorry I have been here hit and miss...but I am thrilled with my DD being so close and have been helping her settle in.

So my rant, it is only that I am tired and wish I had more energy to do more....lol...but taking it easy all day Sun and hoping to on Mon as well.

[selmaS]

  Thanks Annie......I am beyond excited......

Sending u some healing MoJo so hopefully u feel better soon <3

[AnnieDear]

Yay for the move finally happening. I know you've been excited about having your daughter closer :)

My rant... Everything hurts and I'm tired of it. I keep going though :D

Have a great week everyone,
AnnMarie

[selmaS]

  Hi All...looks like no rants last week I guess u all have been having a better time of it lately......

So have I as  I am so thrilled my DD moves in this week...YAY !!!

[selmaS]

  Hi all...,. how ru all doing,,,...ne rants this week.....I just got home from a week in NYC at my DD's..packing for her move back to PA this month.....

I really do not have a rant right now...just busy and tired from all I am doing.....

[selmaS]

  Hi all ne rants this week....I do not have ne this week except that I did not sleep well last night...hate those random nights....sigh....

[selmaS]

   I have days I can not wear a bra....hate that...plus underwire bras are out...I really think it is the EDS that it bothers me so much.....


Either side I sleep on at night is at risk with me....so I try to use the same method the nurses did while in the hospital post op from decompression surgery,....half on my back half on my side to take all that weight and distribute it....

No worries : )