This could be POTS.....or something along those lines...with a drop attack u do not feel nething b4 had and u just drop...so, it is not that .
But it may be neuro related...did they do a EEG? To see if there was ne seizure activitiy? The curled fingers seem more seizure related...I am not a medical professional and have no idea what type of Drs u have been to, but they r not all the same...so keep pushing for answers.
And if u can get copies of tests done to date...call the facility where the studies were done.
The first time this happened a teacher found him passed out in the bathroom. He felt really bad but did not know he was going to pass out. Now he knows that he feels really bad before he passes out. His head will hurt really bad, he usually will vomit before he passes out. He now will lay on the floor because he knows what is going to happen. I found he several times on the floor in the bathroom next to the toilet laying in his vomit. You can talk to him and you know he can see and hear you but he can't move or talk and his fingertips curl.
Hi and welcome to the Chiari forum,
Not all radiologists will report on something they were not asked to look for, in my case they did....I was sent to rule out lymes, and MS when the radiologist saw my Chiari....and they stopped and called my Dr and scheduled more MRI's for the next day.
That does not always happen and we suggest everyone having testing and MRI's to request copies of the test and the reports this way u have it and can easily get other opinions.
There r several conditions with similar symptoms as Chiari so they should be ruled out as well as those conditions related to Chiari.....ICP, POTS, Tethered Cord, Syringomyelia, Ehlers-Danlos, disk issues,....
Even vitamin and mineral levels, Vit D, B12, ,magnesium, and potassium,....and thyroid levels for autoimmue issues should be looked at.
May I ask, did ur son pass out or was it different?
Ask him if he felt he was going to pass out or if he felt fine and was aware he was falling but then could not respond,....there is a diff btwn passing out and a drop attack and this is y I asked,