My .97cm CF has been confirmed by brain MRI. I am looking for a DR in NE Florida.

[Kay0616]

I also have a herniated cervical disc  and scoliosis

[selmaS]

  I figured you meant CM not CF...no worries.

I have a list for FL, this list is not a referral nor an endorsement for those listed it is only meant to be used as a stating place/tool to research Drs...keep in mind you may have to travel..many of us go out of state to find the right Dr.


FLORIDA

Dr. Balis
Dr Lewis
3000 Flecther Ave.
Tampa, FL
[phone]

Dr. Bart Green
Miami, FL

Dr. Eric Trumble
Director of Congenital Neurosurgery at the Walt Disney Pavilion at Florida Hospital for Children
He has double-board certification (adult and pediatric neurosurgery)
615 E. Princeton Street, Suite 540
Orlando, Florida 32803
Phone: [phone]
Fax: [phone]
http://www.neurosurgeons4kids.com/

Dr. Jose Valerio
Cleveland Clinic
Weston, Fl.

[Kay0616]

Thank you for responding. I am so happy to have found this resource...have been reading through some of the exchanges for several weeks now to learn more.  I appreciate the way information is shared.

I am an adult over 50 with scoliosis.  CF and congenitally fused vertebrae were discovered by cervical MRI several months ago.  The MRI was done to help diagnose the source of my head/neck/shoulder/arm pain which has been increasing as I age.  

I have only had MRIs done of the brain, cervical and lumbar spine and an EMG (revealed abnormalities).  A thoracic MRI has not been done yet.  No other tests.  The MRIs did not reveal a syrinx. Based on my symptoms and understanding of the conditions, I definitely have sleep apnea, may have CCI and do not have ES.  I am located in northeastern Florida so would like to see a specialist in this area.  I have been referred to a NS at St. Vincent's Spine & Brain.  I do not know how knowledgeable he is about CF though.

[Kay0616]

By CF I mean Chiari Malformation

[selmaS]

  Hi and welcome to the Chiari forum.

Where are you looking for a Dr?

Have you had testing to rule out other related conditions? Syringomyelia, POTS, ES, CCI, sleep apnea?