Oh, and our brains ARE too big for our skulls... that's exactly how it feels. I told my NL yesterday that I would like him to insall a little pressure valve that I could turn every once in a while... just to release a little pressure. I have that dream periodically... where I just have a little knob on the back of my head. :-)
Hi Donna,
I was diagnosed with and treated for Lyme last year. This was before my Chiari diagnosis. I was having shoulder pain, neck pain, and headaches (from chiari) so after a while I complained to my doctor (who I work with) and she sent me into the lab for some blood work. We did a Lyme titer, RA, and various other things. My lyme test actually came back positive and I took the 21 days of Doxycycline - which is like 21 days of morning sickness, but it's the best treatment for lyme, so I stuck it out. Symptoms didn't go away so we retreated with 30 days of Amoxicillon... which, oddly, seemed to help the symptoms for a while (maybe it was in my head?). Symptoms came back AGAIN and I was off to see the Infectious disease doctor who said "You don't have Lyme disease." I'd had a false positive test. At that point I was told the shoulder pain was probably bursitis, the neck pain was probably a muscle strain, and the headaches were probably stress from it all.
4 months later I was diagnosed with Chiari. There was my answer. And the beginning of a million more questions. LOL
Hi ...yes I know what u mean...I often said it felt like my brain was swelling and was going to split my head open......
Not sure if neone here has been dx with lymes.....I know it is a test done to rule it out as many symptoms r similar...they also rule out MS and lupus.
Have u been checked for Pusedotumor cerebri?
"selma"