Newly diagnosed with Chiari I

[2GApeachy]

I just got a diagnosis.  When the doctor told me, I was so nonchalant; however, having done more research, this is rather serious, right?  I have seen Chiari support groups, etc., so that got me rather scared.  Also, I was reading some of the posts that said that their cerebellar tonsils extended 8 or 10 mm into the foramen magnum.  Well, mine says that it's 1 cm.  How bad is this?  What should I expect?  

[nicolebra]

Hello, I just read your post and I would love for your input. My son who is 12 years old just went for a mri to check his pituitary glands. Well is pituitary glands checked out all good. The problem is while doing the test they found there was a downward displacement of the cerebellar tonsils, particularly on the right by approximately 9 mm with a pointed configuration. My son has not had any problems yet. What does this mean? He was being checked for growth issues and this is what they find? We are having a specialist look at this but no reply back at this point yet. I am scared and not sure what all this means.

[rod44]

Hi. I sent you a PM :)

[selmaS]

  Hi you can send rod a PM (private message ) or a note so he knows you are  trying to make contact as he is not on here all the time and may miss this due to it being an older thread and not one he generated....

I will also send him a note. : )

[Jennettef]

Hi ive jjust come across your post on chairi im still not sure if i have chairi or not but im trying to get as much info as i can as i do have all of these sympthoms and i live in cork also i would be greatful for any information you could give me.

Thanks

[superparalegal]

http://www.conquerchiari.org/documents/presentations/SYMPTOMS Presentation.pdf

I found this site to be very helpful please take the time to check it out.

[selmaS]

  Good Luck <3