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Not so much a question, just wanted to check in. It’s been a while...

Wow I can’t believe I let so much time pass without checking in. I hope everyone is doing well!

I’m coming up on my 3 year zipper-versary.
Time flies I guess!

It’s been a tough year for me. January had a kidney stone. February I got the flu which turned into pneumonia which turned into sepsis.... I was hospitalized and put on super potent antibiotics. Definitely not an experience I’d like to ever go through again. Even with being decompressed the coughing hurt soooo much. Still does now.

I’ve had an increasing amount of migraines and have had a 4 day nonstop headache. And the pulsing whooshing pressure. It’s so maddening.

Sorry for the complaints. I mostly wanted to just come on here and say hi. I miss my chiari friends!
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620923 tn?1452915648
COMMUNITY LEADER
Hi and thank you for the update ! So sorry to hear your year didn't start off well at all....goodness....sending healing MoJo and good vibes for healing.
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Thank you Selma. It’s been trying in so many ways. I seem to never be able to catch a break! And I’m currently in he process of trying to schedule an appt with a chiari specialist. I’ve put it off long enough....

How have you been? Hoping all is well with you
I have my ups and downs as well but nothing like what you are dealing with.....but other wise I am good...I have a grandson that is now 20 moths old....and I surprise myself every time I am with him at how much I love this little guy.....

Sending you prayers....and do try to keep in touch <3
Grand babies are the best Selma! I have 2 and they are the sunshine in my life.
I’ve had 3 migraines in 2 weeks and even when the migraine lifts I’m left with a severe headache going on 15 days consecutively.

Still trying to get in with NS....
Sending prayers you get in......I know all too well what it is like to have pain that just keeps coming and coming.....mine is more muscle spasms now....I believe it is EDS related

Ain't that the truth....sunshine indeed....I can not believe just how much I love this guy....I mean I knew I would but I never knew just how much he would affect me and my life....wow...just wow.
I’m sorry you’re going through that pain. You’d think we’d be used to that I suppose. No fun at all. And thank heaven for your little grandson. I bet he puts a smile on your face even through the pain

I did get in to NS. Scheduled for sept. I have to get my PCP to order the brain and cervical MRI since it’s been so long
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