Aa
OK....DUMB THINGS UR NS SAID~~~~~
Since u all seem to be enjoying adding wonderful comments by ur drs...lets just do a thread of them.....
Have at it all....lol.....
Have at it all....lol.....
A friend of mine is a sonographer for a labor and delivery unit, and is always posting crazy thing her patients ask her. I always told her if she wrote. a book, I would buy it. Someone needs to write down all of these chiari quotes from their dr's... I know. I would buy it!
OMG! I was told that as you older your brain shrinks and your Chiari heals itself too! I said "in about 20 years?" Something like that. Well I dont really plan to feel like this for 20 years if I can help it.
Oh yes and the one if you have surgery it "cures chiari" now I dont think that is true?
Oh yes and the one if you have surgery it "cures chiari" now I dont think that is true?
OMG "taylapj", Calcium?????? No he didn't.......I am a screenwriter and when I come out of this hopefully feeling well I intend on doing a documentary on the ridiculousness of these docs and how we all suffer needlessly and are made to feel crazy. It just sickens me to hear how all of you have suffered!
Haha thease make me chuckle, my best one was I paid to see a private ns who told my GP that I don't have chairi and one is 'allowed 6mm herniation' so I go back to my GP with research I found and also to request help as I was in so much agony, only to be told to accept that I don't have chairi and to take calcium as I seem to be very sick for someone my age ....... Duh!!!
Here is another (I can't sleep so I thought of another) same surgeon as number 1 on my last post:
Day 1
Him: "Let's try gabepentin"
Me: "I am allergic to it, it is in my chart with my primary doctor..he tried me on it"
Him: "okay can you try it again?"
Me: "I have a severe intolerence to it, I am allergic to it"
Him: "Okay lets try keppra"
Me: "okay:
I try it and what do you know I break out in rashes and itch all over w a tickly throat
pharmacist said do not take you are allergic (I am allergic to a lot of meds)
Day 2 - I call and leave msg telling neuro
His nurse: He called in Gabepentin for you (on message)
I call pharmacy and told them to put it back I was not going back to that dr...
day 3
My dr office called and said the neuro sent them a msg asking if I would be willing to try the keppra!!!!!
day 5
nurse on message: Dr.O wants you to take 2 gabepentin at night
me to my husband: "what do they not get???
This whole scenario ought to tell you how my actual visit went - he did not listen to me at all about anything and did not listen when my dr. office told him I was ALLERGIC and I wasn't going back there (guess I need to make another call to them)!
Talk about dumb stuff my neuro said/did! Never going back there again. That was before this wonderful dr I am going to now.
Day 1
Him: "Let's try gabepentin"
Me: "I am allergic to it, it is in my chart with my primary doctor..he tried me on it"
Him: "okay can you try it again?"
Me: "I have a severe intolerence to it, I am allergic to it"
Him: "Okay lets try keppra"
Me: "okay:
I try it and what do you know I break out in rashes and itch all over w a tickly throat
pharmacist said do not take you are allergic (I am allergic to a lot of meds)
Day 2 - I call and leave msg telling neuro
His nurse: He called in Gabepentin for you (on message)
I call pharmacy and told them to put it back I was not going back to that dr...
day 3
My dr office called and said the neuro sent them a msg asking if I would be willing to try the keppra!!!!!
day 5
nurse on message: Dr.O wants you to take 2 gabepentin at night
me to my husband: "what do they not get???
This whole scenario ought to tell you how my actual visit went - he did not listen to me at all about anything and did not listen when my dr. office told him I was ALLERGIC and I wasn't going back there (guess I need to make another call to them)!
Talk about dumb stuff my neuro said/did! Never going back there again. That was before this wonderful dr I am going to now.
I was told by a neurologist when first diagnosed, "I have seen herniations worse than this - your symptoms may be from anxiety." I replied in horror, "When have you see patients use a CANE to relieve their anxiety?." I then limped out of the office.
(keep in mind I have been to many doctors)
1.) Why did they do surgery for your Chiari? (shaking his head and rolling his eyes). I was already mad at him for other comments so I said because I have Chiari and because of all the symptoms I had!
2.) There is no reason to have chiari surgery, it does not cause any symptoms. Everyone has it and you are born with it.
3.) Chiari is a made up disease.
4.) this is a neuro talking about talking to a neurosurgeon or so he says: "I talked to a neurosurgeon and he said with your herniation there is no reason to even consider surgery even with your symptoms you claim to have. He said that 0-14 mm is too small to even have symptoms and surgery would just be a waste of time".
****5.) "Do you even know who your son's father is"? - how rude was that????!!!!!! I was like,"yessss". (not kidding either my husband was there with me at the time and we about peed our pants, shocked that the neuro asked that! What does my son's parental status have anything to do with my Chiari,symptoms or pain?)
6.) Surgeon: "I did a great job! Your surgery site looks great and your MRI results are completely normal, everything is good" - 6 months after my surgery and everything had dropped again and my cerebellar tonsils were protruding again (along with horrible symptoms), but he said it looked great...hmmm.
Ohhh...I have many more but those are to get ya started...ha ha. Number 5 is the one that really gets me!
1.) Why did they do surgery for your Chiari? (shaking his head and rolling his eyes). I was already mad at him for other comments so I said because I have Chiari and because of all the symptoms I had!
2.) There is no reason to have chiari surgery, it does not cause any symptoms. Everyone has it and you are born with it.
3.) Chiari is a made up disease.
4.) this is a neuro talking about talking to a neurosurgeon or so he says: "I talked to a neurosurgeon and he said with your herniation there is no reason to even consider surgery even with your symptoms you claim to have. He said that 0-14 mm is too small to even have symptoms and surgery would just be a waste of time".
****5.) "Do you even know who your son's father is"? - how rude was that????!!!!!! I was like,"yessss". (not kidding either my husband was there with me at the time and we about peed our pants, shocked that the neuro asked that! What does my son's parental status have anything to do with my Chiari,symptoms or pain?)
6.) Surgeon: "I did a great job! Your surgery site looks great and your MRI results are completely normal, everything is good" - 6 months after my surgery and everything had dropped again and my cerebellar tonsils were protruding again (along with horrible symptoms), but he said it looked great...hmmm.
Ohhh...I have many more but those are to get ya started...ha ha. Number 5 is the one that really gets me!
You just have a little TAIL on your brain and it's not causing all your symptoms. NO need to worry...
What the ???
What the ???
My phychologist told me today after hearing about all the stupid comments I have had from doctors that she thinks doctors are only good at helping us with.....colds, or broken bones, things we really could take care of ourselves. LOL Why do we keep going????
At least we can laugh at it now anyway.
At least we can laugh at it now anyway.
I am thinking going to a doctor for chiari is like paying to see a bad comedian....... Semi funny but not worth the over priced tickets
Well the dumbest thing that's been said to me thus far has to be ....."Having a headache is just an experience we go through. It isn't real. Just think of it like this. You have a fire alarm, and that fire alarm should only go off when there is a fire right? Well, your fire alarm is broke so it is constantly going off, but there is no fire. "
Seriously??? The sad thing is he got paid to waste my time. I was the one out my gas, money, and time!!!
Seriously??? The sad thing is he got paid to waste my time. I was the one out my gas, money, and time!!!
My husband JOKED about that. He's no doctor, but he knew enough to repeat that stat to me with HUMOR!!!!
I agree with Selma... his head has been shrunk (must be dating a witch doctor or something...)
I agree with Selma... his head has been shrunk (must be dating a witch doctor or something...)
COMMUNITY LEADER
LMAO...yeah it will shrink...but not as much as that drs did already...lol....
The very first NS I saw (8 years ago ) told me " When you get older, your brain will shrink, and your Chiari will go away!
COMMUNITY LEADER
My favorite is the walk around the office to see ur gait..well .....lets see....ummm...I can take 3 steps this way, then mayb turn around and get 4 over that way.....come on...really?? If I have to concentrate as to where I can walk I am focus on my walking and it will not look bad.....it is when I am moving about and not concentrating that I lose balance.....
Why do they do this in a tiny office???
Why do they do this in a tiny office???
The ENT specialist stated there is nothing neurologically wrong with you. Change your lifestyle and you will be fine...So off I go loose 36lbs and still my symptoms persist????? they then refer me to NL have brain mri.... they state mri normal...... 9 months later and another NL they see from same mri.. oh you have swelling on yr brain...... 4 months on and here I am being told it is a developmental issue you have had it all your life, its mild and your symptoms are in your mind........So why was I up all last night with that awful sensation that drive me nuts and we cant describe, buzzing,tingling,vibrating you no the one and today feel exhausted.Total joke what we have to go through.....
I went to an NL with symptoms, told him I had been diganosed with Chiari about 10 or 15 years prior and had been symptom free between when I was diagnosed and the time I was symptom free up to the last few months before I landed in his office... He did the mini neuro test which I passed and he said "If you have a chiari maliformation, I'll eat my shirt" He made the comment without looking at an MRI or anything. I don't remember the last time I laughed as hard as I did that day since the symptoms returned.
I stood up closed my eyes and proceded to fall backwards twice, my left lower leg was numb and various other fails on my mini neuro tests. The NS says "I will be back in a few minutes let me look at your scans". So he returns and says your neuro exam is essentially normal and this tiny little herniation is so small cant be causing a problem. After all you were born with it. I dont see any reason to see you back!
15 minutes and $350 to be dismissed. What a moron he is!
15 minutes and $350 to be dismissed. What a moron he is!
I think it is great when they make you do all sorts of funny nuro-test things like touching your nose ect. and then procede to tell you the only symptom of Chiari is headaches! Why in the world did you make me do all those things then??
Or "you need to go home and go on an agressive weight loss program. That will take care of your Chiari malformation."
One asked if I had done research online. He said that some sites are overly enthusiastic about symptoms and I should ignore those sites.
Or "you need to go home and go on an agressive weight loss program. That will take care of your Chiari malformation."
One asked if I had done research online. He said that some sites are overly enthusiastic about symptoms and I should ignore those sites.
These are so fun to read. : )
I stand by the one I posted: "your problems are induced from post tramatic stress and yes you have a normal low lying cerebrial tonsils but they are part of an asymptomatic incidental Chiari". Oh yes and I am now scheduled for an "elective" surgery to fix them.
How is low lying normal??? And how can it be asymptomatic when I am botching about symptoms??? And the best who and the hell chooses to have brain surgery??? It isn't like I am having a mole removed that I don't like seeing when I wear a tank top or getting lasic eye surgery because I don't want glasses.......
I stand by the one I posted: "your problems are induced from post tramatic stress and yes you have a normal low lying cerebrial tonsils but they are part of an asymptomatic incidental Chiari". Oh yes and I am now scheduled for an "elective" surgery to fix them.
How is low lying normal??? And how can it be asymptomatic when I am botching about symptoms??? And the best who and the hell chooses to have brain surgery??? It isn't like I am having a mole removed that I don't like seeing when I wear a tank top or getting lasic eye surgery because I don't want glasses.......
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