I have my info on my profile page and a journal posted there for the members to read,
Yes, I have a DX, in fact a few, and I had surgery 4 yrs ago for my Chiari....waiting on another surgery for tethered cord, and a disk issue.
I also was DX'd with Ehlers-Danlos.....
U can send me a PM (private message if u have more questions) : )
Since I am just starting to go through all of the diagnostic tests (There are lots to figure out what mixes and mingles!) Could you please describe to me your symptoms and whether you have a formal diagnosis of this or not?
Hi I wish I knew more about this, and I wish u all the best with this Dr....keep us posted on how u are doing. ((hugs))