Aa
Aa
A
A
A
Close
Avatar universal

Post Chiari Surgery

so, I had a chiari decompression surgery 11/29.  I developed a CSF leak and infection of the CSF fluid following the surgery.  I have been either in the hospital or going for twice a day antibiotic infusions until this past week.  I was put on steroids to aid in my recovery, and have since developed Cushing Syndrome like symptoms (swollen face and upper body, rapid weight gain, sore muscles, etc)  from the steroids.  the doctors are finally tapering the steroids due to these symptoms.  I suppose my question is I'm still having terrible headaches and pressure and pain in the back of my head.  anyone else have a similar situation?  how long can this be expected to last?
3 Responses
Sort by: Helpful Oldest Newest
620923 tn?1452915648
COMMUNITY LEADER

  Hi and welcome back....so sorry u r having such a bad time......

The leak could be causing u to feel like that...what have they done to stop the leak? A blood patch?....

Another issue could be cerebral ptosis....have they done a MRI since u had a leak and an infection? What type of dura patch did u have?

   And lastly did they rule out Ehlers-Danlos? Some have it pre op, but find out post op...it can be the reason for a leak and even an infection, plus with a lamenectomy it can also cause cerviocranial instability to worsen....so, u feel worse.

So it really depends on what is going on....and how they treat it.

Helpful - 0
Avatar universal
Thanks, SelmaS!  No, they thought the best thing would be to let the leak heal on its own with bed rest.  I had an MRI earlier this week that showed there was still fluid, but the amount of fluid had decreased.  I had a bovine dura patch. thanks for all these suggestions!  I'm going to start some research!
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  I had a CSF leak yrs ago after I had my DD....and mine sealed up but I was flat for everything except to go to the bathroom....I ate laying on my side....no fun....but u have to say down....I was down for 5 days.....

Good luck to u <3
Helpful - 0
Have an Answer?

You are reading content posted in the Chiari Malformation Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
987762 tn?1331027953
Australia
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease