Chiari Malformation Community
5.21k Members
1086646 tn?1257663630

Problems after surgery

I had brain stem surgery in 07 from Chiari Malformation and 3 months later I suffered from seizures, migraines, and intense pressure in the back of my neck. I have had 3 MRI and have seen 2 diffrent specialist only to find out everything looks normals. Is it possible I have pressure building up in my neck? I hear snapping, crackling, and popping noises behind my ears all the time. The pressure and pain in my head is a nightmare. What is the cause of this? Why am I 10x worse after surgery?  

Also I was diagnosed with Tethered Cord Syndrome and Spinal Stenosis... Who specialisis with all these disorders??
Please Help!

Jami Kuhlman
4 Responses
620923 tn?1452915648
Hi and welcome to the Chiari forum.

I am not sure what u mean by brain stem surgery for chiari...I had a posterior fossa decompression...which is a surgery that can remove or shorten the cerebellum tonsils by cortorizing.....some bone is chipped away to make more room and a patch is put into place to hold the tonsils up where they need to be .......

A good chiari dr can handle chiari, tethered cord, cranial instability and more.

And many with chiari can have several related conditions as well.

Did u have the decompression surgery?

Avatar universal
Glad to see you made it over here to the forum.
1086646 tn?1257663630
Sorry it took so long to get back to you!! Yes, I decompression surgery:)

620923 tn?1452915648
HI Jami,

Well if u have tethered cord and did not have surgery to release it that could be part of the problem as TC is a constant pulling down on ur brainstem.

Have u been to a chiari specialist?
When was ur last MRI?

Have an Answer?
Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
987762 tn?1331027953
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease