Hi I hope someone can advise etc. I had a 2nd op back in march 2016 for tethered cord and following post op I started have quite severe lower back pain and left leg pain and found it difficult to move bladder and bowel. After several months I found that each time i tried to pass my bowel the pain would spike and I would not be able to walk my head would either feel like it was pushing in when standing or exploding when laying down etc
Any ways after several MRIs and many months of wait my specialist explained I have a pseudomeningocele and this is causing the problem, each time im causing pressure by walking or standing too much and obviously when passing bowel the abdominal pressure causes the pseudo to to fill up as a small leak must form each time , this happens at least once a week and makes me cautious to go to the toilet.
My surgeon doesnt seem to want to do anything other than refer me to another surgeon for a internal electronic stimulator which I don't particularly, I have congenital scoliosis and octave spinabifida and worry about other possible complications plus this will not fix the leak or the bad heads.
Anyone have any advice ? should this not be fixed ?