Question about meds

[PrimitiveGuy]

Hi Everyone,

I have not written for a long time because not much has changed for me but I am getting depressed with pain every day. My pain level is mild but every day and it is dragging me down. I have seen a new Nuro Dr and he is not sure my pain is from my Chiari so he had me get a steroid shot in the back of my head hoping it would decrease any inflammation. Well, that did not work to help the pain. He also gave me some meds to try and help I think called Neurontin. That did not help either. Does anyone have any suggestions of some meds that you have tried and have helped with your headaches? A headache is really my only symptom right now but so far nothing I have ever taken to try and make it go away even comes close to making it go away. Any advice would be really appreciated because I go and see the Dr. again on Nov. 19th and I would love to have some suggestions for him. Thanks for all your help.
Joshua

[denverluv]

I have to get hose nerve block shots too - are you sure they got the right spots? I was dx with Occipital Neuropathy after the Chiari surgery, basically nerve damge in my brain and neck. I webt in today as a matter of fact, and one thing they say is tha if they hit the nerve, it will HURT if they get the one they want. I can tell you, the dr that did it last time never hit a nerve. Today, the girl hit every single one, because when that medicine goes in it is burning through those nerves before they go numb. Ask if you can go back.  Also I take morphine extended release, one in the am and one in the evening, and Norco, which is 10 mg hydrocodone and 500 mg acetaminophen. Basically the strongest vicodin. My pain is rarely at a zero, but with the meds and the nerve blocks I am pretty good to go.

[sleepypea]

Hi,
I have tried a lot of different meds....most were unsuccessful.
Propanolol does help really well for HAs. I was on it for quite a while, however all it was helping was the HAs and I have other pain issues as well so I am now just taking a mild narcodic it's called Panlor SS...A lot of Dr.s don't know about this drug and get it mixed up with Pamlore which is an antidepressant so if you ask for this make sure they know the differance... I really like it and it seems to take the edge off. The pressure never goes away but all the other little nagging pains are gone while it's in my system. I noticed that I was only getting about 3 hrs relief at the time and it is rxd at 60 pills a month or every 6 hrs so my GP told me to break them in half and take a half every 3-4 hrs and see how that worked and I tell ya....It did the trick :)

Hope this helps you out some. I know how miserable it is!!

[n40066]

topamax did help a little prior to surgery, but not a whole lot.  it does seem to be helping me more now, with the cervical neuropathy when i take it at a higher dose, though.  you might consider trying 30-50mg per day and see if that might take the edge off.  other than that, surgery is about the only option!  do you have a blockage of csf?
elizabeth

[taylapj]

Hi, I tried many pain killer meds for headaches, the only thing that has worked is beta blockers, thease reduce the amount of pressure in the brain by widening the ventricles to increase flow, I've been on them 2 weeks and all ready feeling the effects, I still get headaches but not daily and I defo don't have 'fuzzy head' anymore, also the hearing loss and tinitus has improved greatly. Propandanol is what I am on 40mg 3 times a day, be sure if you go on these that you get your heart rate checked weekly by a nurse tho cause they slow your heart rate down. Xx

[xmelax35]

I take treximet, it is very costly. Insurance covered it once, then they stopped. The doctor gave me a lot of samples. (between that and relpax). Then the insurance finally decided to cover it I get 9 pills a month (if i need more the doctor gives me samples). I can tell you it is never enough for me between that and the vicodin (I don't take much vicodin, just when I want to stay out of the ER - but I have a little something different going on since my chiari surgery). So anyway, the treximet does wonders for one of my headaches I get. If it is a regular migrane it goes away - or rather it covers it up. (I have 4 different headaches I get now - but with the one it helps a great deal).

[selmaS]

Hi...Neurontin did not work for me either...sorry, in fact I did not find meds that did.....everyone is different.

I still get HA's and my Dr gave me a RX for Topamax.....u may want to ask ur dr about it....I have not tried it as yet.....and it seems to have many uses...HA's being one of them.

Please keep us posted Joshua
I pray u feel better soon : )

"selma"

[dermarfx]

For me the Neurotin, is allot of help....
However the pressure head pain that goes along with Chiari, nothing help honestly...some things may help you deal with it a little better. I wish you the best ...russell