Nice to hear from you again cmoeller, I couldn't believe how they treated me either because the spinal specialist that saw me who checked for tethered cord and for any syrinx knew something was wrong and was quite freaked out about it. He was freaked out because I was having what I call a low sensation day each time I saw him and my feet, ankles, arms, and jaw had no reflex reaction. So he wanted me to see the neurologist for a migraine medication and see if speech therapy would help my speech some. He also wanted them to review all previous material that maybe the other doctors missed something. They really didn't do anything my spinal doctor wanted them too.
The whole medication problem is what really frustrated me I am still waiting on the forms in the mail to send back. They acted like I was faking everything almost. Like when I told them I had the mito-valve prolapse (spelling?) they had to listen to my heart just to make sure I knew what I was talking about. I guess since my speech is screwed up they thought I was mentally handicapped because they asked me what my highest grade level in school was. They said it in such a way they didn't think I graduated high school. (I have a BA degree in Christian Education)
Anyways back to the meds they had a medicine list because they told me to stop taking my muscle relaxer that prevents me from having full body muscle spasms. Which after talking to others with Chiari the muscle spasms are pretty much because the brain is telling all the muscles to go off at once. So with the relaxer I just have full body twitches not full blown seizure look a like spasms. I would rather try something besides amitryptiline first, and then if nothing else worked then try that.
Well I gotta go,
God Bless,
Dustin
†
TOTALLY UNBELIEVABLE!! I can't believe that you were put through something like that...especially after already being dx'd with a neurological condition!! That is completely unacceptable and I urge you to fill out those forms.
I don't know what planet these dr's are on if they think that we want to be like this!!! Don't let this stop you from figuring out what is going wrong, you need to tune those dr's and find someone different.
I too, have been suggested to start amitryptiline...the suggestion was made by a Dr who is extremely supportive of my issues..so it is a fairly common med prescribed to help you sleep and sometimes it helps nerve pain. What is not acceptable though is that it could contradict with your heart meds!! I can't believe they would give you something w/o checking it out first.
I would write these drs completely off and DON'T let it get to you!!
I'm so sorry you had to experience that..
Carolyn
Dustin,
Ah, right. Yes, that would be not just unprofessional, but I would say quite reckless, too. I wish you luck.
Lisa
I know that they do sometimes use it for migraines in lower doses than they use it for depression but, the fact still remains that it does not work well with my heart medicine and other medication I am on...I just found it so unprofessional of them doing that.
Dustin
It's sad to hear when people are treated so unprofessionally by the people who are supposed to help us! I have to tell you, when I started having migraines at about 40 yrs old, the neurologist put me on Amitryptiline as a prophylactic measure for the headaches. They do use it in higher doses for depression. My old neurologist never tried to suggest I was depressed. He just gave me the prescription starting at 10mg and, eventually upped it to 30. In case it helps to take the sting out of your visit a little bit - I thought you might want to know that they really do prescribe it at lower doses for headaches. (I have other friends who have had the same prescription over the years also).
Good luck!
I spent from 2005 until 2008 being told it was all in my head. 3 years being messed about while my life fell apart around me. I had to stop working, driving & at times I could not leave the house, I was hospitalized twice after suffering drop attacks, it was all put down to Anxiety first, then Menears Disease, then Benign positional vertigo . Eventually it was decided to do an MRI witch showed up my problems.
We need to fight our corner if we feel we are not getting the care we need. Something is causing your problems, you may need to get another opinion.
Ray