I don't know what could be going on with your collection of symptoms, but for myself, I have only scoliosis and migraines in common with you. I've done some reading here and there and I've come across something called homocysteine, and I've been wondering if mine is high. I found out there are places I can get it tested, either with blood or one place with urine, to see if mine is in normal range, without a doctor's order. I just sent away for one of these self-pay test orders.
High homocysteine can be caused by low B vitamins, especially folate, B6 and cobalamin (B12). It can be exacerbated by genes such as abnormal/subnormal methylation (one-carbon metabolism) or less than optimal cystathione-beta-synthase (CBS) enzyme.
You could research some of these if that interests you.
I've read that betaine, B complex, and omega 3's (like flax seeds/oil) can sometimes help lower homocysteine levels, but that wouldn't correct existing skeletal abnormalities like scoliosis.
Hi...sorry I do not have scoliosis or a syrinx, but I was wondering if you have leg issues and bowel issues...if so you may have tethered cord which could have caused the scoliosis.
Sorry your insurance is halting the investigation as to what is going on.....sometimes when you have a change in symptoms they (Dr) may be able to use a different code to get the INS to approve....it really depends on your Drs ability to get around the INS.