Aa
A
A
A
Close
Chiari Malformation Community
5.21k Members
8170270 tn?1413845335

Second surgery experience?

Hello,

I had decompression surgery about two and a half years ago for chiari type 1. My symptoms have not improved and after several MRIs my surgeon has informed me that scar tissue has built up around the brain stem blocking the ventricle and preventing sufficient CSF flow. Endoscopic third ventriculostomy. Has anyone experienced needing this as a second surgery following their decompression?

Symptoms post op include migraine, pressure, nausea, clumsiness, fatigue, muscle pain etc.

2 Responses
620923 tn?1452915648
COMMUNITY LEADER
Hi Krystinamarie...there have been a few others that have had issues such as your scar tissue forming and creating yet another CSF obstruction and had surgery to help restore flow.  Do you know did you have a dura patch placed and what type was it.....then did they also rule out EDS?
Avatar universal
Please don't do decompression again!!! Make sure to look into other surgical options before jumping into decompression. This procedureeven works great on people who have already had decompression. Decompression usually only provides temporary relief before symptoms return and progression continues.Tight or diseased Filium  is a major cause of chiari and syringomyelia. I had chiari, a syrinx, syringomyelia, mild scoliosis and several bulging cervical discs. I Had a simple surgery in Barcelona with one night in the hospital. Doing fantastic. 100% of my symptoms were gone within two days of surgery. Doctor here is now invited to serve on the new worldwide chiari and syringomyelia task force. Global expert. Know many other people who had the same procedure and all doing great years later including small children. France and Italy Healthcare system will pay for the surgery in Spain. The doctors in Barcelona will review MRI's and history for no charge and let you know if you are a candidate for their procedure.
http://institutchiaribcn.com/en/diseases-we-treat/arnold-chiari-syndrome/
1 Comments
What was the name of the surgery you had?
Have an Answer?
Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
987762 tn?1331027953
Australia
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease