HI,
I too am experiencing this problem. I am 36. I had a normal sex drive up until about 5 years ago. I have almost no feeling down there. I'm numb all over, so I do believe that is my problem. I have brought this up to all of my Dr.s and all I ever get is maybe I should see a therapist. It's really stressful because I know it's connected to the Chiari compression, but no one seems to want to deal with it.
I too have researched or tried to research this one. I have other issues besides CM that could influance this.
Ok as dear sis commented, difficult for a public forum but here goes...
Knowledge truely is power right?
Sexual Dysfunction, not a problem. No the problem is similar to what the orginal poster commented about with his compainion. I have no problem with desire or function. The problem is lack of feeling. In fact I didn't realize how much of a problem until a recent in depth neuro exam. Guys normally know if someone is thinking of touching those certian male parts. However during the exam I was laying down and was told to lay with my head the other direction. When stuck with a pin in and around the scrotum area I couldn't even tell it was a pin. That is freaky!
I'd assumed this was from other issues going on but now wonder if it could be a combined effect from CM????
CW
Hi...this is a hard topic for many to dicuss on a public forum, and may be y u did not find as much info as u may have thought u would, use the search this community to find older threads on this topic as it has been brought up here b4.
I can attest to this being an issue pre and post op....I however did not get a dx until age 48....and I do have other related issues, so not sure how they play into it.
Do u know if ur girl friend has ne chiari related conditions, like syringomyelia, EDS, ICP, POTS , tethered cord....as they may be playing a role as well
I also talked to the NS about this issue. It's like after surgery my brain is upside down and going from being active to not wanting anything to do with it. I acturally went last week and bought a pure vitamin it's called: Damiana this is suppose to help with the sex drive. It's also said to help with enegy. I'm 2 yrs post op so for your GF it might just take some time. Just be patient. Maybe trying this will help. Best of luck.
Linda :)
I am exactly the same as you describe. I was diagnosed a year and a half ago and the sex drive went around the same time. Stress could definitely play a part here, but I do believe that the compression can somehow play a part as well. Being 50 complicates the issue too...who knows?
I am 32 and have a similar issue. But it was pre op for a few years, hoping after I heal from 2nd surgery I just had it will be normal again. Our brains were compressed and the nerves effected can effect any part of our bodies. Give it time for it takes a long time even after we feel better to heal....or seek a professional opinion.