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Specialist in San Francisco?

Can anyone recommend a Neurologist who specializes in Chiari 1 Malformations in San Francisco? I just got diagnosed  but also have neurological symptoms related to late diagnosed Lyme Disease, and I need a skilled specialist to help determine what's what.

Thanks!
Best Answer
620923 tn?1452915648
COMMUNITY LEADER
Hi and welcome to the Chiari forum.

I was also tested for lymes, lupus and MS to rule these out as many conditions share symptoms....it can be quite confusing.

Do u have copies of ur MRI's? Were u given a CINE MRI to check for blocked CSF?

We have a thread with a list of drs that members here have gone to...we do not offer names on a larger list as many of the lists were not updated or were not true chiari drs....so we r trying to compile a list of drs that have treated chiari and the patient liked the dr in order to place them on the list.

There may not be a dr in ur area and u may have to travel.Below is the link to the thread I mentioned...there is a dr listed in Palo Alto, CA.....I know there is another dr in CA, ....but is associated with Kaiser Medical if that helps his name is Dr. Won in Fontana
http://www.medhelp.org/posts/Chiari-Malformation/LIST-OF-CHIARI-SPECIALISTS/show/1121460

So happy to have u join us here, so sorry for the reasons u had to seek us out.

"selma"
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620923 tn?1452915648
COMMUNITY LEADER
Hi a CINE MRI is similar to a reg MRI in that the tube is the same...settings r diff....it is done in 2 parts...u go in like with ne other...when u come out to start round 2 they inject a contrast dye and put a clip on ur finger to monitor ur BP...this is all done to study the flow of ur CSF to see if there is a blockage.

The Brain MRI should be w/wo contrast....and separate from the CINE.

"selma"
Helpful - 0
Avatar universal
I'm waiting to get an MRI of my brain as soon as the insurance pre-authorizes it. This week I had cervical and thoracic MRIs but not CINE. Can you tell me what a CINE MRI is? Should I be trying to make sure that's what I get for my brain MRI coming up?

Thanks so much for your help.
Helpful - 0
979826 tn?1389036358
dr ellenbogen I've heard is fantastic but i'm not sure if he's only peds.
Molly
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