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Stem Cells for Chiari
Has anybody considered stem cell therapy to repair the damage done to the nervous system/brain? I had my decompression done 3 years ago and have been dealing with insomnia and central sleep apnea ever since. This leads me to believe that my brainstem/nervous system is damaged. Stem cells are obviously the only option to repair the damage... http://www.csfinfo.org/education/physician-information/repair-and-regeneration-central-nervous-system/. I have seen people in testimonials with Multiple Sclerosis and Parkinson's Disease and even people with severe strokes benefit from stem cell therapy. Being that the damage done to one with Chiari is halted after the surgery is performed and Chiari doesn't attack the entire brain like MS and Parkinson's (just the base of the brain that is being compressed), this makes me assume that one with Chiari has a lot higher chance of benefiting from stem cell therapy. Anybody considered getting stem cell therapy?
COMMUNITY LEADER
Ok I did some looking and those with POTS can also have MCD....POTS is related to Chiari so go figure...lol...
COMMUNITY LEADER
My Chiari specialist did my testing...or a NL working in his office did...they used a series of questions and the Beighton score as a means to determine if EDS was present...then once I was DX'd I was told to see a geneticist....and there is a great one on the East Coast, but she is in another state....and has a year or more wait list...and it is my goal to be seen by her.
I am sure anything is possible....I am really new to learning about MCD so, I am not sure but when I find out I will let you know.
Yes, it really is amazing. The possibilities of stem cells are endless. They can treat things like severe arthritis, bulging or herniated discs, paralysis, brain damage, diabetes, etc. all without going under the knife. They are making great strides in places like Europe, Mexico, and many other places. But, America's FDA (Food and Drug Administration) regulates stem cells extensively because stem cells will cause the profits of pharmacies, surgeons and the entire medical community for that matter to decrease.
That is absolutely intriguing. So much so, I Googled it. This is a website I found. http://www.csfinfo.org/education/physician-information/repair-and-regeneration-central-nervous-system/
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Hi kstavrid.....I have not heard of this as a treatment for Chiari....but I have a few questions for you regarding your insomnia......have you been tested for EDS and have they ruled out Mast Cell disease? Many with EDS have MCD and are unaware....but we tend to over produce histamines and can have issues with sleep.....my Drs now have me on antihistamines and they do help me get more sleep....
I am interested if you find anyone with info on this type of treatments.....