He said it was Chiari 1. I had a CINE MRI done and it was normal. So frustrating.
Did he say mild chiari or did he say chiari zero? I had no herniation, but I had at least 18 symptoms (not even that much!), and have had improvement just since last week. So to me, it's either symptoms or no symptoms.
You really want to be sure that there are no other issues going on, like selma says, nor compression elsewhere. If it can be taken care of in 1 surgery, I'm sure that's what you'd prefer.
I had a laminectomy 12 yr ago, and the specialists are finding that if there is compression in the neck then there is compression in the head, and vice versa, about 50% of the time.
Im definitely going to chek on it. Thanks Selma :)
Well that is not the way for them to dx this, just asking bcuz I would have said I was not double jointed or flexible....but, when I had PT, they said my ROM was far past what it should have been for the surgery I had on my knee....now I know y, with help I can easily move my joints and limbs in ways I can not do alone....had I worked at it, eh mayb then....
Find a rheumatoid Dr that knows how to dx EDS and get this done, and see if this could be part of ur issue, with what u said so far it seems u could be.
Thanks Selma I'll definitely look into it. I've had doctors ask me if I'm double jointed but that was about it in regards to EDS. I'm not double jointed and don't have elastic skin but do have fatigue, issues with gums, thin skin, bruise easily, popping joints and veins that are easily seen. My most recent weird symptom is chills in a small area. My shoulder will get chills then my forearm on the opposite side of my body and so on. There doesn't seem to be a pattern or reason for the chills. Weird.
Hi and welcome to the Chiari forum.
Not all Chiari specialists treat Chiari0, a herniation less, then 5 mm but it is not the herniation but the obstruction of CSF flow that is of concern as well as over crowding....
With some of ur symptoms the joints popping u should be sure to be tested for ehlers-danlos, those with EDS can have cervio cranial instability and this in itself can cause many of the symptoms u mention.
Without a CSF obstruction and a Dr that looks for EDS and how it may be affecting u may not have the right Drs yet....do look at a few others, I know it seems like u have been to a few already but getting the right Drs is key!!
Scroll to the bottom of this screen and click on the Health pages hyperlink for a list of Drs...and tips.