I agree, EDS is very mean and nasty!! My synthetic patch was the continued problem and even on the 4th time he opened my head, it was still the bovine scraps causing leaks! I am hoping things are working this time for me. I did find that the 2nd, 3rd, and 4th surgery the incision and neck healed quicker but that was me. They said since there was no bone removal there would be less pain. It was still not easy but I do think a bit better. Good luck and I hope they can fix it this time around!! Hugs and support to you!!!! -zygy
Hi June.....so sorry u r going back in, but I pray this ends this issue for u....as I have said b4 if u have EDS leaks can be an issue if the patch is nething but ur own pericardium.....u may be rejecting the patch....JMHO
Do u know what type of patch they will use this time?
Sending <3, ((hugs)) and prayers
Sorry for the complications; will be thinking of you!