7205189 tn?1447794738

Swallowing Problems and Biting Tongue???

I've always heard swallowing problems are part of Chiari. I'm wondering when I should become concerned? I definitely have noticed myself choking more. The most alarming situation is when I'm chewing gum/eating chocolate or juicy fruits that cause excess saliva or random liquid to slide down the back of my throat. My swallowing reflex just starts going uncontrollably and I can't breathe! It's so weird, but definitely freaks me out. The only way to get it to stop is to drink water or cough. I've also noticed I've been biting my tongue REALLY bad lately-it gets bruised and bleeds for hours. It's almost like it doesn't move out of the way in time when I'm chewing-something that should be automatic?! Should I be concerned? What sort of doctor would I even look into for this? Is this normal/consistent with Chiari or EDS?
1 Responses
Sort by: Helpful Oldest Newest
620923 tn?1452915648
Hi...yes swallow ing issues do show up in those of us with Chiari and routine swallow tests do not reveal anything helpful since it is not physical but neurological....I had issues where I would take a sip of water/juice and never swallowed it all and never realized it until I went to take another sip....
Many of our autonaomic system does not respond well.....when CSF flow is disrupted it can cause many of our autonaomic  responces to be interuppted.
Drop attacks are one issue we can have due to the CSF flow being blocked....breathing issues.....the list is pretty long.
Have you had surgery.....sorry I know you have posted before but I can not recall your history.
Helpful - 0
I have not had surgery. Headaches have decreased a lot and realized a lot of my symptoms are from EDS/POTS/possible MCAS. This is the only new thing that has started concerning me. I've had some vision problems which I know could be related, but my neurologist was no help so I just gave up investigating those. I'm just concerned with swallowing problems being a possible sign of chiari symptoms declining?! I guess it's just another thing to live with??
When have you had a MRI last? A CINE MRI? that would indicate changes......and since you have new symptoms you should have a new MRI if it is 6 months or longer since your last one.
I had an MRA a few months ago with some vision problems and they were concerned about blood vessels. But I'm thinking the last CINE MRI would have been several years ago. All my headache symptoms have decreased though so I've been focusing on EDS/POTS stuff. Maybe I should see a neurologist. Sadly, I need to change because mine has a very ignorant view of Chiari (says no way any vision problems are from Chiari, etc.) and I have no idea where to start looking! Thanks for your input!!
May I ask where you are located? Maybe we can help you find a different Dr?
Sometimes the symptoms cycle so it is possible for the headaches to appear better for a time....but with any changes all the testing should be done.

Your angiography would have been focused on your eyes? It may not have shown anything with the cerebral tonsils.....so a MRI might be in order too......not sure what the Drs or INS would say.
A NL is the one to DX you and a NS only uses surgery to help treat this condition.....so yes a NL is who you need to see next, however we only list NS's  ...BUT they tend to have a NL work with them so, I would deffinately consult witih a NS's NL  to see what is your next best course of action.
Have an Answer?

You are reading content posted in the Chiari Malformation Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
987762 tn?1331027953
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease