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Chiari Malformation Community
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4186651 tn?1357830957

Symptoms come and go?

This is so new to me. Is is part of Chiari symptoms to come and go? I almost feel back to my old self. Just nauseous and very little dizziness from day to day with all the body aches. I'm petrified to have another migraine though which I get frequently!!!
8 Responses
1903798 tn?1333905288
Symptoms can come and go and are often are stronger based on the activities we do/or don't do.  Have you been tested for Ehler Danlos Syndrome?  You mentioned body aches which I have all the time from EDS.
620923 tn?1452915648
COMMUNITY LEADER

  Hi u had asked this on the other thread ...but so others reading this as well.....yes, as Mel has mentioned above...Chiari symptoms do cycle.....it can be based on ur stress levels or ur physical activities.....so it may be helpful to see what ur triggers may be...this will help u avoid some of the flares.

Testing for EDS is very important...as it can affect how u feel and heal should u have surgery....
4186651 tn?1357830957
I don't think I have that syndrome! I don't have all that flexibility. Thanks for the reply though.
620923 tn?1452915648
COMMUNITY LEADER

  U do not have to have all the flexability to have it as there r many types of EDS...so, u should have it ruled out....I said the same thing when I was first told about EDS, and then I was dx'd with it....so u never know.
4186651 tn?1357830957
Hopefully my NL will be up to date about everything when I see him Friday! My hands and feet are always freezing cold and numb. They even turn white like no blood flow! I've always bruised very easy.  My doctors office always thought I was being abused by my husband!
620923 tn?1452915648
COMMUNITY LEADER

  The easy bruising is an EDS symptom...so is the cold feelings...or known as Raynauds....so u could have EDS....

Are u slow to heal too...ur bruises last a long time b4 they go away?
4186651 tn?1357830957
Always had slow healing ever since I can remember! I never gave it much thought before. A simple scratch always ended up a scar,  bruises lasting forever ...the list goes on and on!! It's all starting to make sense now! Thanks for the answers. I've been diagnosed with Raynauds migraines osteoarthritis asthma fibromyalgia chronic fatigue mortal valve prolapse svt osteopenia carpal tunnel ...and more!! Had both my knees with ligaments torn, you name it I have it...
620923 tn?1452915648
COMMUNITY LEADER

  But see that could all be EDS .....especially the fibro as I was misdx'd with it too....

Do u mean mitral valve prolapse...that is EDS too....same with the CFS...

I also torn the meniscus in my knee from a drop attack and had to have surgery, was told yrs prior I had tarsal tunnel,...I did not, it was the Chiari causing the issues....did they do a EMG study on u?
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620923 tn?1452915648
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