Hi and welcome to the Chiari forum.
So sorry ur DS is having to deal with this, and I know this will be a frustrating journey for u all....know u r not alone, all the members here are available for support and info.
I am not sure about the Hospital u r going to, but we do have a list of Drs here that the members have been to and liked..the list is not a referral, it is only meant to help u start ur research of drs.
http://www.medhelp.org/health_pages/Neurological%20Disorders/DOCTORS-LIST-FOR-CHIARI-SYRINGOMYELIA/show/1062?cid=186
Since ur DS has slight scoliosis also have them check him for tethered cord.....and Ehlers-Danlos...and a few other Chiari related conditions...sleep apnea, disk issues, ICP.....
U want to be sure the Dr u see is a true Chiari specialist.
"selma"