From everything I've read a syrinx and chiari can be related...so the dr is misinformed.
It is great that ur CSF flow is good.
May I ask where is ur syrinx located?
"selma"
Forgot to say CSF flows well around tonsils
No crowding. Syrinx and Chiari are unrelated, or so I was told by one neurosurg. Seeing another one shortly. Can get up n the morning with the tingling. Tingling in face can be worse around mouth even when i smile. Thanks Selma
Hi,
I know that feeling all to well....I had it for many yrs and I recently had my surgery and it is still too soon to know all the benefits, but my numbness is gone.
I do not know where u live or if u have a chiari specialist, but that is what u need to do....get all the testing done and rule everything out.....u already have a syrinx, do u know if u also may have Tethered cord?....EDS....hydrocephalus?.....
My herniation was the same as urs, but I have severe crowding and compression.
The size is not the determination for surgery....low to no CFS flow and overcrowding is a bigger concern than the size.
we have a thread with drs listed that members here have used and like.....if u need help locating this let us know.
"selma"