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Chiari Malformation Community
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Avatar universal

Twitching

My body is acting crazy. Its like I'm a dance floor and there are crazy ppl dancing on me. Random twitching everywhere then I get electric jolts thru my whole body. Not super painful really just uncomfortable and shocking. It so weird. Anyone else get this?
17 Responses
Avatar universal
I am also experiencing twitching and tremors. Also an electric jolt is a good way to describe it. It starts between my shoulder blades and shoots down my left arm. :(
Avatar universal
Mine goes thru my whole body like I'm startled. And the twitching is everywhere. My daughter was sitting next to me on my bed and we were watching my hand/wrist twitching when a jolt ran thru my body down my legs. She could feel it in my legs. Of course she laughed because she said I make a funny face when it happens. Then its like its affecting my speech. I tried to say yoga pants and couldn't say it to save my life. I sounded like Curly from the 3 Stooges "Yeeyeeyeeyeeyee". We had a good laugh about it. I took an epsom salt bath and it stopped but started up again shortly after just not as bad. Not much else to do but laugh I guess but its really weird feeling and kind of irritating.
620923 tn?1452919248
COMMUNITY LEADER

  Yes  this is a common issue as well...it can be very off putting to have this especially depending where u r...home is not as bad as ur bosses office...lol...

I had co-workers that thought I was winking @ them...lol...

All just part of Chiari fun...
Avatar universal
  This is a 'newer' experience I've been getting (newer -- as in last 6-8 months or so). My body will 'jump' at rest or sometimes (ok often) my body twitches -- like if you have the shivers but I don't.  Periodically I've also been experiencing what I describe as being similar to a 'short circuit'.  Really, I don't know how else to explain it other than seeming like all of a sudden a fuse is gonna blow or BAM! the lights are gonna go out, but thankfully they don't!
     But most of the time my responses to my 'blessings' are the same as  BB11 -- laughing it off.  That's really all I can do...  my fam likes to tease when I completely forget conversations, or slip words in that have absolutely NO relation to what I'm trying to say!  However, I AM discussing the new sensations of short circuiting with my NL.
4703993 tn?1379771988
I had just mentioned in a post about 5 minutes ago how I am experiencing electric shocks as I sit here.  I feel it starts from my head and shoots randomly through my body.  It is such an uneasy and uncomfortable feeling.  I have gotten this about a dozen times since being diagnosed with Chiari.  I as well get random tremors and twitching too.  I told my neurologist about the electric shock sensations and he said that is coming from my brain due to the Chiari.  Just another lovely symptom to add to the never ending list!
4689100 tn?1358801534
I too have these weird little twitches and muscle spasms. It's crazy because they come out of nowhere! I have them in various places on my body, but they are all on the right side. My eye will even do this, it feels so weird. We were watching tv one night and all the sudden my middle finger on my right hand starting jumping sideways over the top of my index finger for no reason  at all.  At night when we lay down in bed to sleep, it feels as if my legs are jumping or shaking, but they aren't, I don't know what that is?
Avatar universal
That happens to me often as well. One of the fingers or thumb will start shaking like crazy and I cant stop it. I agree Selma it's better to be at home when it happens than in public. Especially with the speech. I often forget what I'm saying mid conversation or random words come out of my mouth that make NO sense to what I'm saying. A lot of things have now become a "bucket". That is my go to word if I can't get the right word to come out of my mouth which make my kids laugh like crazy. Of course it's my choice of word but seems to be one my brain likes. Sometimes I can tell when the wrong word is coming and end up stuttering or just can't talk at all. God Bless all us chiarians for these changes we experience. I never really knew how much I took for granted until all this started. Seeing life through completely different eyes makes me appreciate life so much more. Blessings to you all!  
Avatar universal
*Not my choice of word. Lol.
620923 tn?1452919248
COMMUNITY LEADER

  Make sure ur Dr looks at ur vitamin and mineral levels too...low magnesium and Vit D can cause some of these issues too,.
Avatar universal
Thank you. I started taking magnesium again after the epsom salt bath seemed to help with the twitching. Still getting them although the jolts have stopped the last coupla days. My DH was taken via ambulance to hospital in NY for chest pains the other day. He had 2 stents put in his heart before xmas. I freaked out and my mom drove me to NY from MI (he's an OTR truck driver). We are home now and seeing his cardiologist tmrw. I think the adrenaline helped me to not notice symptoms as much. Now I'm numb today. I know the stress and the drive was too much on my poor body. I'm also getting frequent pounding in my left ear. Unfortunately with all this going on I had to cancel my appt to be tested for POTS. Just want to get DH taken care if then I'll get back to my stuff. Hugs and blessings.
620923 tn?1452919248
COMMUNITY LEADER

  Goodness I am so sorry I pray ur DH is ok....keep us posted ((hugs))
Avatar universal
Thank you sweetie. Will do. Hugs back.
Avatar universal
Wow, I'm new to this forum and the thread above just made me laugh!!! I've been experiencing all of these symptoms and would panic because I didn't know what the heck was going on. But now that I know I have Chiari I'm trying to accept it and I'm comforted to know that I'm not alone! What's the worst symptom that you have experienced? Has it ever prevented you from doing your job? I'm noticing now that I have to read and re-read and re-read my emails at work because I throw in random words that don't make any sense!!! How embarassing! Will this get any worst? I also throw in random words in a conversation that doesn't make sense. I find myself really concentrating on my choice of words before they fly out of my mouth.
Avatar universal
Hi and welcome!!!  I am on SSD as I cannot work. I had the decompression surgery Jan 2012. I have Chiari, TC, EDS and possible POTS and CCI along with a host of other issues. I know it was so great for me to find these forums to chat with others that know and experience what I do and just to find out I'm not alone. I hope you find comfort here!  Blessings and hugs!  
Avatar universal
What is TC, EDS, POTS and CCI? I'm not understanding a lot of the abbreviations that I see on these posts.
Avatar universal
They are common conditions related to Chiari. EDS = Ehlers Danlos Syndrome, TC = Tethered Cord, POTS = Postural Orthostatic Tachycardia Syndrome and CCI = Cranio Cervical Instability. Look them up and see if you think you could have any of them. Its important for your NS to know if you do. There are other things that could be related as well but I'm still learning them as well.
620923 tn?1452919248
COMMUNITY LEADER

  The Health Pages has a lot of the info u r asking about, and we even have a page for the abbreviations we use - http://www.medhelp.org/health_pages/Neurological%20Disorders/Acronyms-and-computer-short-hand/show/509?cid=186

Do take a look at the Health Pages for info and tips even links to great info.
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