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Chiari Malformation Community
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1645944 tn?1305243337

Update on Post Op Progress -8 Months

Hi All,
I have been so busy restarting my life that I have failed to update my MedHelp friends of how I am after surgery.
I am 8 months out and I am very happy with the results thus far. My brain is where it belongs and my head is whole -- well getting whole.
The sugery I had included a reconstruction of my skull with a sythetic absorbable plastic plate screwed into my skull. That was covered with Hydroxy Apetite, a special amino acid made to generate bone growth, so technically I am under construction - growing a skull as we speak.
Pros- I can do things I thought I would never get to do again. I have ridden my horse (walking only for now - and with a helmet), gone swimming with my kids, and practice softball with my daughter.
Cons- Until the skull is fully grown, I have to content with a plate in my head that expands and contracts with weather changes. That makes it feel almost as bad as before on occasion with pain and unsteadiness, particularly in the winter. (I'm thinkin of moving to Tahiti, where it's always warm).

All in all I am discovering this: Chiari doesn't have to be a life sentence. There is life after surgery. I know that there are some cases where there is so much damage that the recovery never ends. And there are some surgeons who do their very best, but still not the best that is out there.

Truthfully, my faith has carried me further than any doctor could. I still have the same challenges as most of us, with my neck and shoulder muscles sensitive to temperature, and the tightness we all get after surgery. But when I feel something that bothers me, I stop what I am doing and say a prayer for all Chiarians, that they will find warm moments of comfort. Funny, it happens less often now.

I haven't fallen since surgery. I have been able to laugh and cry without losing my abilities afterward. This life is good, and according to the doc, it will only get better with time. I am experiencing that.

I hope this message encourages any of you who are walking through this with me. It's a road we travel on, but not a hole we live in. We press on, and together, we make it one step more each day toward and fuller more whole life.
I'll be thinking about you -
Abby
4 Responses
Avatar universal
I am so happy to hear how well you are doing!!! I am having my decompression next Thursday (Feb. 9) It definitely helps to hear positive feedback from people who have had it!

Congrats to you my friend!!!
Krystal
620923 tn?1452915648
COMMUNITY LEADER

  Hi Abby! Thanks for the update, when ur older post came up the other day I wondered how u were doing.....so, glad u popped on to let us know : )

I am  also glad to hear u r doing so well.....

  I would suggest u copy and paste this into a journal on ur profile page so u  can add to it and ne one can read it easily.

Sending prayers u continue to have a smooth recovery.

    "selma"
1306714 tn?1327257080
So happy to hear of your good recovery.  I have never heard of the surgery yu had it sound's very interesting and a better recovery.  So happy that you can get back to the enjoyment of life.  As you said.  Little step's at a time.  Thank's for the encouraging words.  They give all of us hope, and something to look forward to.  A better tomorrow
1679858 tn?1346765181
So good to hear that you are doing well!  I have thought about you often -- thanks for the encouraging words and keep getting better!
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