Sorry so late in getting back to you! I was on 100 mg twice a day! I know that's not exactly low or high but it was enough....I have been on it for about 2 years myself!
I just couldn't not let my friends here know about this as there are so many of us on this medication!
If you are already high risk due to family history you really need to be checked regularly and monitored very closely!
Unfortunately so many times we are not warned about these type of side effects, either they don't know about them or they figure it's worth the risk. That shouldn't be their decision! We as the patient have the right to be informed of every possible side effect, especially ones as dangerous as this one!
Have your regular eye doc check for it and then you can request to see a specialist and have them refer you to one that will monitor you closely while you are on this medication.
My specialist told me I had to stop taking it altogether!
OMG indeed this is not something I was aware of and I do have a family history of it....yikes....
May I ask were u on a high dose of TOPAMAX and for a long time?
I am on it for almost 2 yrs, but a very low dose.....I knew about possible kidney stones....now this...ugh....sigh
Thanks for that warning! OMG.
I recently learned from my DD that long term contact lens use does something bad to your eyes (I want to say thins the cornea, but can't remember exactly right now). She had her eyes lasered several years ago, but the damage was already done. Probably teenagers should not wear contact lenses.