Chiari Malformation Community
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What PT has helped or hindered recovery?

Hello.  I am 9 months post op.  I have been experiencing extreme tightness in my lower skull and upper neck, that has been progressively worse in the last few weeks, and causing a great deal of fatigue. Heat helps a little, but not much. My NS did not recommend PT in the first few months after surgery due to CSF leaks; they have all resolved a few months ago.  Today, I received a note from his PA that he will prescribe PT and that Range of motion exercises, stretching, building endurance, massage, TENS may be beneficial in relieving the tightness in the neck.  I have seen some posts here that some pt has been more harmful than good and would like to hear from those who have had PT.  I plan on making an appointment for a full consultation before I begin, but value all of your opinions first.  Thank you all so much!
2 Responses
620923 tn?1452915648

  Hi...miss u on the forum.....it sounds like u may have tight muscles from not moving...make sure ur PT knows what u can and should be doing as not all exercises are ok for us.

The RX for PT should include that but ask and make sure it does.

Good luck.
3060676 tn?1440702944
I had the same tightness and stiffness after my first PFD.  Maybe about 5 months later I began PT and it helped tremendously! They used a TENS on my upper back and did range of motion exercises. My PT contacted my NS office to be sure his plan for on target.  I felt much better after a few weeks.  The first few visits were tiring and painful because I was not moving those muscles at all.  Ice helped after those visits.
Good luck to you!
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