What is a cerebellar tonsillar ectopia measuring 5mm?

[Cathyd1]

I had an mri done and it shows that and it also shows a few scattered1mm foci of t2 prolongation bilateral supratentorial white matter. The Dr order this after having a lot of simptoms. Please Can someone tell me what this is. Thank you.

[Cathyd1]

Thank you!

[selmaS]

  It is possible it is nothing much to worry about..the foci...sometimes it can indicate headaches.....

I am sure your Dr will explain all of this to you......sorry I can not offer more insight.

[Cathyd1]

The sentence is: few scattered 1mm foci of T2 prolongation bilateral supratentorial white matter.

[Cathyd1]

Thank you very much, i will travel anywhere. Thank you

[selmaS]

  I am not a medical professional....just another person with Chiari like yourself....I went to NY to have a Dr see me and review my case and then decided to use that Dr for my surgery.

There is a list of Drs for FL. but it is not a referral nor and endorsement for those on the list...you need to research them to find the right Dr for you.
And keep in mind you may have to travel.

FLORIDA

Dr. Balis
Dr Lewis
3000 Flecther Ave.
Tampa, FL
[phone]

Dr. Bart Green
Miami, FL

Dr. Eric Trumble
Director of Congenital Neurosurgery at the Walt Disney Pavilion at Florida Hospital for Children
He has double-board certification (adult and pediatric neurosurgery)
615 E. Princeton Street, Suite 540
Orlando, Florida 32803
Phone: [phone]
Fax: [phone]
http://www.neurosurgeons4kids.com/

Dr. Jose Valerio
Cleveland Clinic
Weston, Fl.

As for the scattered foci...can you give the entire sentence it is in....as I am sure there is more to it then just scattered foci. Does it mention white matter?

[Cathyd1]

I leave in florida in lake county area, the question is that I will like to know    what is scattered fosi.
I have change my doctors several time and suffer for ceonic pain since my 17 and every year is more and more pain is from my fingers true muy head. I have 4 kids and because of them I stand up every morning but somethimes I think I will not be able to stand up. Thank you very much gor your answer. Where is your office located?

[Cathyd1]

I also have memory problems that my husband make me see, I put thinks from fridge on cabinets or cabinet thinks in frige I have somethimes thinks on my hands and I look for them like crazy, and I forget wher I put thinks. People said I'm to joung for this kind of stuff but they don't understand what i'm going tru. I always tell them, are they not babies that just born and die and they are just babies, that is really sad, and I don't understand it. so if that is possible anything is possible. I was really active person independent, I don't like to ask peolple for help like moving heavy stuff or thinks that ussually womans ask to their husband to do, I like to work and no depending on a men or anybody. I used to do wheights on my 12 thrue my 16 and I was a really stong child, with health issues, but strong, and from my 17 thrue now I feel worst and worst. Is really depressive, I can't do anything I used to and I have to ask for help, because even that I try it feel like my back and arms are going to broke or something. I been looking a long time for some one to help me, but I was't able to find anyone. No body find anything they don't know anything. Is sad that you go to a dr because they study for a long time, thinking that they are going to help you and you get out of there with your hands empty, felling the same and knowing nothing about why you feel like that.

[selmaS]

  Can you re word your question...not sure what it is.....

May I ask where you live...what area?

GERD and reflux are related conditions to Chiari....and even joint pain is common as many of us have a related condition called Ehlers-Danlos.

There is more testing you will want to be sure you have....starting with a full spine MRI to rule out a syrinx and a CINE MRI to see if you have a CSF obstruction.

  A syrinx can also cause pain and even the absence of pain when you would expect pain.....

I do not think you have bad luck, I think it is that there are too few Drs well informed and experienced with Chiari and related conditions.

[Cathyd1]

I just get out from my neurologist and he said I'm ok beside I have hepilepsy and That came out on my mri he said I'm ok? I'm now making a second opinion appt. This have been going on for a wile now and also I had fall many times too because of loose of balance. Also I been having for a year and 1/2 a rrealy bad abdominal pain and attend several hospitals and first they said it was constipation then it was gerd then they said it was gastritis and is the same pain and they don't know what it is i feel it all day but somethimes it get stronger and I have to bend like fetal possition for I can hold pain. I don't know what happen with doctors maybe I habe bad luck with them. I just hope to find the right one. Thank you.

[Cathyd1]

Thank you I will like to know what is Thank you, I will like to know what is scatter fosi as well, I suffer from migraines since I was 8 but like a year ago I start having verry weard headaches, when I bend down, while singing,certain movements or somethimes it came for no reason, nauceas, I have several chronic pains in all my body and dr. Say is not from my four disc herniations c4,c5,t4,t5 because they are mild herniated, bad cramps specially in my legs and arms, my hands, back, and legs hurt the most but even my fingers hurt not even pain medicatios help at all. I have weekness, and tingling in my body, I wake up at one time and I still have my eyes and face like I just wake up for four to five hours. I have blured vission, and when I read small leters they move to the sides, and at the end I was getting brest milk thats why dr send mri he tod I had a pituitary tumor but pituitary aperears been ok on mri. I also swet a lot wile sleeping and feel really cold. Like a fever simptoms. Please if you can help I will apreciated. Thank you!

[selmaS]

  Hi and welcome to MedHelp.

Cerebral tonsillar ectopia...is sometimes called Chiari Malformation....the herniation of the cerebral tonsils can be acquired....or congenital.

You will want more testing done, as it is possible to have more then this one condition as it often is accompanied by other related conditions.....

There are many of us that have this condition....may I ask what symptoms you have been having?