I feel lost. I have a neurologist who has been treating me for migraines with Gabapenten, Razatriptan, and and Topamax. I was diagnosed with mild Cerebellar Ectopia (3mm) in December. I went to a neurosurgeon to attempt to build a team of people as that is what I had read about on the internet, the neurosurgeon ran a cine MRI to find that the majority of the CFS flow is normal, but diminished under the tonsils. The neurosurgeon explained this in a seven to ten minute appointment stated they couldn't help me as I was not a surgical case and that was it. I am three weeks into my first Botox treatment for pain and still waiting for results. I am getting rather depressed as it feels with the chronic pain and lack of sleep that my life is kinda falling to pieces. I have spoken with my Neurologist about the possible worsening symptoms (dizzy spells, problems swallowing, numbness in hands) and if they are connected to the Cerebellar Ectopia today at my appointment, I was told that the Neurologist didn't feel that these symptoms had anything to do with the cerebellar Ectopia. I asked what would be the next step if the Botox didn't help after my next appointment for it in June or July, and was told that we would have to sit down and discuss it at that time.