You Know you have Chiari when ~~~

[selmaS]

finish the statement.

This is a fun thread we have done b4...seems the right time to do it again..

[ChiariWolf]

... you go to the ER and the Doctor informs you that your chart looks like a medical experiment. They offer you no help or direction just send you to another hospital. Then you that Chiari is in your head and your chart.

[lasel22]

Here's a few for me:

The thought of taking  a shower is too much work.

You get electrocuted in a public pool and your first thought is "what is going wrong with my body now" instead of "I need to get out of this pool"  yes, this actually happened :)

Always hearing, "well, you look good!"

[selmaS]

lol lasel22 Oh I hate that one "well you look really good"....ugh.. AND how scary t be electrocuted like that....but I know too well we do get sensations like that to think it is us and not an outside force.

[Initwithyou]

Your showing people pictures of your brain instead of grandchildren, pets, children, ect.

[huskerfan71]

When you cough or sneeze and see a fire works show in your head......followed by a headache.

[thatredhairedgirl]

I just saw a pic on Pinterest that said "you know you have a chronic illness when you have to give yourself a pep talk just to get off the couch to get a drink" lol so true

[thatredhairedgirl]

You know you have Chiari when you're actually really happy that a part of your body (ex. Fingers, hand,leg,feet etc) finally goes numb because that's the only way you won't feel any pain in that particular place.

I remember one day I was driving and my legs were in excruciating pain and I just kept praying to God "please help me, please just ease the pain even a little bit and I'll be happy" and a few minutes later they went numb. Idk if driving with numb legs was good but I made it home and got to lay down!

[KerriC1]

Yes, it's getting very close isn't it? I imagine you're all so excited! Grand babies are amazing!

I'm doing as good as I can be, now diagnosed with too much csf on the brain and am on diamox.... I prob should start a new thread so as not to take away from this one. I love this thread

You know you have chiari when your medical costs outweigh your car payment!

[selmaS]

  I am doing well...tired and sore as I am over doing it getting ready for my daughter's baby shower...and loving it all....lol...How have you been,

Exactly....thanks for posting to this thread : )

[KerriC1]

Hey Selma, how've you been?

How bout when you see more Drs than you do most of your own family!

[selmaS]

  I am hoping we can get members to reply to this thread.....

[selmaS]

  Even when the MRI indicates Chiari, your Dr says your symptoms can't be due to that......sigh