You know u have chiari when~~~~~~~

[selmaS]

finish the statement.

This is a fun thread we have done b4...seems the right time to do it again......

[selmaS]

  Hi and welcome to the Chiari forum.

U may want to start a new thread with ur questions and concerns as it may get lost in this thread.....

Many of us have been accused of either not being truthful about our symptoms such as overstating them or being drug seekers....it is difficult as not many Drs r well informed or experienced with Chiari.

And yes to ur questions about choking...as for the sleep issue, if u r gasping for air, that may be sleep apnea and it is considered a related issue  and u should be tested for it.

Just know u r not alone.

[frankie_rush]

When your eyes fell like someone is trying to make Wine, using them.  Squeeshy, Squeeshy

[ChipegO2289]

I know what you mean! I have all kinds of whole-body symptoms that have increasingly gotten worse over the past couple of years, until I got an MRI done. The first one apparently did not show Chiari because no one said anything about it, but this past January (2-3 years later), I got such scary symptoms that I knew I had to find an answer, and he said I did have Chiari, but he blew me off and said it wasn't causing my symptoms. However, I researched the disorder, and the symptoms it lists are EXACTLY what I'm having!

[ChipegO2289]

Let me tell you...I started having scary symptoms this time last year (thought I was having a stroke or a heart attack), and I called an ambulance and was taken to the ER....where they treated me like scum because they thought I must be drunk. Every test they did turned out normal, and I was discharged. The doctor thought maybe I had MS or an enlarged heart (based on palpating it), and I had to have all kinds of tests done. MRI showed Chiari Malformation....I shouldn't complain because at least mine isn't bad enough to require surgery, but truth is, I am miserable, and I feel like no one gets it...until I read these posts! They hit the nail right on the head, but everyone else thinks I'm flitty, paranoid, emo (which I have been since a couple of years before the "big" symptoms started), weird, hypochondriac, just "stressed," and I get so fed up! I love this page because y'all actually get it. Question: does anyone choke, feel faint/fluttery, see colored spots, and basically get the sensation that they're deprived of oxygen and dying when they wake up from deep sleep?

[Pjg1066]

Loved that!!!!

[selmaS]

  Hi and welcome to the Chiari forum.

I am so happy to hear u were able to get info from reading and I am even happier that u decided to join us by posting.

Please feel free to start a new thread and ask questions....one at a time, how ever is best for u....just know u r not alone <3