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620923 tn?1452915648

You know you it's the Christmas season with Chiari/Syringomyelia when.......

...complete the statement....no Monday rant until after the New Year...

Tell us how u do the holiday's different bcuz of ur chiari or syringomyelia, IIH, or what ever condition u may have.

I pray u all have a pain free Christmas and a Healthy New Year~!
11 Responses
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620923 tn?1452915648
COMMUNITY LEADER
aww...so true Shane....so many things take on new meaning these days : )
Helpful - 0
555358 tn?1292532061
The lyrics, "...Tidings of Comfort and Joy..." take on a whole new heartfelt meaning.
Helpful - 0
999891 tn?1407276076
I hope Santa dont have Chiari or he will have fun going up and down all those chimneys lol.
Helpful - 0
1422823 tn?1287679280
Do all your shopping online :)
Helpful - 0
Avatar universal
..You can't help but to wonder if these are the last Holidays you will spend with your family...You wonder if this "thing" is gona eventually deteriorate you. ..But then you hear the optimism in your spirit and hold on to your faith..and pray that God pulls you through another year =-)
Helpful - 0
1387052 tn?1279650966
You think of great ideas for homemade gifts or decorations and think, "Is it really worth the pain and exhaustion I'll have when I'm done?"

You remember Christmas' past and wonder how in the world you ever had the energy to do all the things you used to do.

It takes you weeks to do the decorating that used to only take a few hours.

Penny
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER
u have to map out ur schedule much further in advance in order to be able to get it all done....that is 10 times the "normal" for a reg chiari month....lol..



So true Niki...if it wasn't for kids...that makes everyday worth the efforts and pain : )
Helpful - 0
1372734 tn?1309950237
you spend to long writing your cards out and wrapping your presents and feel really poorly after with huge cog fog and pain in your back and legs, then dont sleep for days because of it!!!!!!!!!!!!!!

But all worth it when you see your childrens faces open their gifts.
Helpful - 0
Avatar universal
You wear sunglasses shopping in bright stores but dont even care that people give you funny looks!  I LOVE Christmas shopping and refuse to give up all my shopping days! Bright store lights sometimes make me dizzy.. but wearing my shades help!  Haha.. i get funny looks.. but i just look at them funny back! :)  
Helpful - 0
1496859 tn?1304515434
You cant sleep due to pain bcuz you over did things.. again :) not complaining though I love this season :)
Hope you all have the best holiday!
Helpful - 0
1500699 tn?1363393598
Internet shopping is the way to go since making it through the store to purchase what you want can be quite challenging at times.
Helpful - 0
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620923 tn?1452915648
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